A place for genetic uncertainty
Parents valuing an unknown in the meaning of disease
Bibliographic Data
| ID | 4588929 |
|---|---|
| Authors | Ian Whitmarsh (University of North Carolina at Chapel Hill), Arlene M Davis (0000-0001-6486-0446, University of North Carolina at Chapel Hill), Debra Skinner (0000-0002-2550-8033, University of North Carolina at Chapel Hill), Donald B Bailey (0000-0002-0513-9330, RTI International) |
| Year | 2007 |
| Volume | 65 |
| Issue | 6 |
| Pages | 1082-1093 |
| Publication date | 2007-09-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Social Science & Medicine (JOURNAL) |
| Journal identifiers | ISSN: 0277-9536 • E-ISSN: 1873-5347 |
| Publisher | Elsevier BV (PUBLISHER) |
| DOI | 10.1016/j.socscimed.2007.04.034 |
| PMID | 17561324 |
| PMCID | PMC2267724 |
| OpenAlex | W1970654178 |
| Language | EN |
| Citations received | 26 |
| References cited | 58 |
Economics · Epistemology · Meaning (existential · Pathology · Positive economics · Public health · Sociology · Autism Spectrum Disorder Research · Ethics and Legal Issues in Pediatric Healthcare · Family and Disability Support Research · Medicine · Philosophy
When the Cystic Fibrosis Label Does Not Fit
Variants of unknown significance on chromosomal microarray analysis
It didn’t mean anything” – moving within a landscape of knowledge to interpret genetics and genetic test results within familial cancer concerns
The social shaping of a diagnosis in Next Generation Sequencing
Negotiating blame and responsibility in the context of a “ de novo ” mutation
Pregnancy termination for fetal abnormality
Negotiating the Diagnostic Uncertainty of Genomic Test Results
Navigating the uncertainties of next‐generation sequencing in the genetics clinic
Patient and family trajectories of mitochondrial disease
The Spillover of Genomic Testing Results in Families
Narrating Disability, Narrating Religious Practice
Hyperdiagnostics
We're kind of like genetic nomads
The embodied experience of genetic inheritance in hereditary thrombophilia
Fifty years of sociological leadership at Social Science and Medicine
What's at stake? Genetic information from the perspective of people with epilepsy and their family members
Reconfiguration of uncertainty
Uncertainty and Regimes of Temporality Among Girls and Women with Turner Syndrome in France
Gene worlds
Introducing Social and Ethical Perspectives on Gene-Environment Research
Patients-in-Waiting
Genetics and Social Inquiry
When the state and your kidneys fail
Exploring stigma
Passive tolerance and productive uncertainties in food allergy immunotherapy biomedical practices
Families dealing with the uncertainty of genetic disorders
Medical Uncertainty Revisited
Testing Women, Testing the Fetus
Handbook of Social Studies in Health and Medicine
Surveying 'slides'
Mothers and Models of Disability
(Re)Constructing Genetic Disease
Handbook of medical sociology
Rebirthing the Clinic
The best experts
From "reducing" to "coping with" uncertainty
Living without labels
I just want permission to be ill
Emplotting children's lives
Health professionals, their medical interventions and uncertainty
Ruling in and ruling out
Back pain and the resolution of diagnostic uncertainty in illness narratives
Mothering children who have disabilities
Quest, chaos and restitution
Suffering and the Social Construction of Illness
Enabling Disability
Producing genetic knowledge and citizenship through the Internet
Dilemmas in fetal medicine
Dysmorphology and the spectacle of the clinic
Predictive genetic testing and the making of the pre-symptomatic person
Genetic risk and the birth of the somatic individual
Experiencing the Genetic Body
Illnesses you have to fight to get
| Unique citing works | 26 |
|---|---|
| Citations per year | 1,44 |
| Citation span | 2008 - 2025 (18) |
| Citation velocity | recent |
| Highly cited | No |
| Citation types | Neutral: 26 |