On the possibility of a disabled life in capitalist ruins
Black workers with sickle cell disorder in England
Bibliographic Data
| ID | 4589521 |
|---|---|
| Authors | Simon M Dyson (0000-0002-4735-2527, De Montfort University, corresponding author), Karl Atkin (0000-0003-1070-8670, University of York), Maria J Berghs (0000-0002-6512-7921, De Montfort University), Anne‐marie Greene (0000-0002-0695-3182, University of Leicester) |
| Year | 2021 |
| Volume | 272 |
| Pages | 113713 |
| Publication date | 2021-03-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Social Science & Medicine (JOURNAL) |
| Journal identifiers | ISSN: 0277-9536 • E-ISSN: 1873-5347 |
| Publisher | Elsevier BV (PUBLISHER) |
| DOI | 10.1016/j.socscimed.2021.113713 |
| PMID | 33540149 |
| OpenAlex | W3123738403 |
| Language | EN |
| Citations received | 7 |
| References cited | 35 |
The link between workers with sickle cell disorder (SCD) and employment has until now been seen through the lens of the person's disease, not their relationship to work (paid and unpaid). Using SCD as a case study, we foreground relations of employment, setting sickle cell and work into ecological context. In 2018, two focus group discussions and 47 depth-interviews were conducted with black disabled workers living with SCD across England. The relational concepts of Anna Tsing (2015) - salvage accumulation, entanglement and precarity - were used as an analytical framework to assess the reported experiences. To understand the experiences of those with SCD and employment, it is necessary to apprehend the whole ecology of their bonds to their bodies; their social relationships of kin and family; and their wider social relations to communities. Paid employment breaks bonds crucial to those living with SCD. First, employers can only extract sufficient productive value from workers if they disregard the necessary self-care of a precarious body. Secondly, reproducing labour though child-care, housework and care work is a taken-for-granted salvage central to capitalism. Thirdly, voluntary and community work are salvaged for free by employers towards their accumulation of profits. People with SCD find bond-making activities that create the commons life-affirming, thereby reconfiguring our understanding of connections between disability and work. Tsing, AL (2015) The Mushroom at the End of the World: On the Possibility of Life in Capitalist Ruins Princeton, NJ: Princeton University Press
Capitalism · Care work · Context (archaeology · Political science · Politics · Precarity · Sociology · Value (mathematics · Work (physics · Gender Studies · Hemoglobinopathies and Related Disorders · History · Homelessness and Social Issues · Law · Parvovirus B19 Infection Studies · Social Work
A Racialized Capitalism Perspective on the Work and Employment of Black and Minoritized Ethnic Workers Living With Sickle Cell Disorder
Self‐management interventions for children and young people with sickle cell disease
Determinants of social security coverage among gig workers in Indonesia
Impact of disease- and race-based discrimination in health care on pain outcomes among adults living with sickle cell disease in the United States
Representing disabling experiences
Adults with sickle-cells in a migration-driven rare disease setting
The double bind of social legitimacy
Racism and migrant labour
What’s wrong with work?
Intersectional Sensibilities in Analysing Inequality Regimes in Public Sector Organizations
The precariat
Managing Sickle Cell Disease in Low-Income Families
Risky Business
Sociological Practice
The refusal of work
Toward a critical politics of precarity
Living a 'normal' life
Body as a Machine
Postmodernism, Rationality and the Evaluation of Health Care
The Mushroom at the End of the World
Work, employment and society through the lens of moral economy
The ill-treatment of employees with disabilities in British workplaces
Managerial control and workplace regimes
Disability, work, and welfare
Extending Conceptual Boundaries
Working to live, not living to work
| Unique citing works | 7 |
|---|---|
| Citations per year | 2,33 |
| Citation span | 2023 - 2026 (4) |
| Citation velocity | current |
| Highly cited | No |
| Citation types | Neutral: 7 |