Patient participation in priority setting
Co-existing participant roles
Bibliographic Data
| ID | 4590174 |
|---|---|
| Authors | Mette B Steffensen (University of Copenhagen), Christina L Matzen (University of Copenhagen), Sarah Wadmann (0000-0003-3357-5479, VIVE - The Danish Center for Social Science Research, corresponding author) |
| Year | 2022 |
| Volume | 294 |
| Pages | 114713 |
| Publication date | 2022-02-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Social Science & Medicine (JOURNAL) |
| Journal identifiers | ISSN: 0277-9536 • E-ISSN: 1873-5347 |
| Publisher | Elsevier BV (PUBLISHER) |
| DOI | 10.1016/j.socscimed.2022.114713 |
| PMID | 35032747 |
| OpenAlex | W4205319644 |
| Language | EN |
| Citations received | 7 |
| References cited | 40 |
Reflecting a 'participatory turn' in healthcare, a variety of activities have been adopted in many countries to harness the views of patients, relatives and service users. While celebrated as a way of empowering patients and increasing the legitimacy of decisions that impact on patient care, critics contend that practices of patient participation often fall short of the ideals they purport to implement. In this article, we investigate how patients' participation in medical priority setting corresponds with the regulative ideals of deliberation and how the practices of participation influence the ability of patients to make their voices heard. Building on document analysis and semi-structured interviews with 12 patient representatives and four scientific officers in the Danish Medicines Council, the analysis demonstrates that conflicting notions of valid knowledge constituted a main challenge for patient participation. The study contributes to the literature on patient participation through a conceptualization of four co-existing participant roles: 1) compliant keepers of experiential knowledge, 2) lay experts investing in evidence production, 3) knowledge translators engaged in alliance building, and 4) demonstrators promoting public contestation. We suggest that a main challenge for PP initiatives is to take into account this variation in patients' engagement
Health Systems, Economic Evaluations, Quality of Life · Healthcare innovation and challenges · Mental Health and Patient Involvement
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The rise of patient and public involvement in health research in Denmark – a qualitative study of funder's policies and practices
Algorithmic accountabilities and health systems
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How to’ Use Social Theory Within and Throughout Qualitative Research in Healthcare Contexts
Deliberative processes and evidence-informed decision making in healthcare
Document Analysis as a Qualitative Research Method
Nonverbal contention and contempt in U.K. parliamentary oversight hearings on fiscal and monetary policy
Tactics of material participation
Shifting Subject Positions
The good, the bad and the perfect
Deliberative Democracy or Agonistic Pluralism? The Relevance of the Habermas-Mouffe Debate for Third World Politics
Which Champions, Which People? Public and User Involvement in Health Care as a Technology of Legitimation
Experiential Knowledge
A Ladder Of Citizen Participation
Limits to Health Care
It all depends
Questions regarding 'epistemic injustice' in knowledge-intensive policymaking
Power relations and contrasting conceptions of evidence in patient-involvement processes used to inform health funding decisions in Australia
Member Checking
The struggle against neuromuscular diseases in France and the emergence of the "partnership model" of patient organisation
Deliberations about deliberative methods
Representativeness, legitimacy and power in public involvement in health-service management
Thematic networks
Ordinary people only
| Unique citing works | 7 |
|---|---|
| Citations per year | 1,75 |
| Citation span | 2022 - 2026 (5) |
| Citation velocity | current |
| Highly cited | No |
| Citation types | Neutral: 7 |