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Searching for relief from suffering

A patient-oriented qualitative study on medical assistance in dying for mental illness as the sole underlying medical condition

Dados Bibliográficos

ID4596873
AutoresHamer Bastidas-Bilbao (0000-0002-1103-6530, Centre for Addiction and Mental Health), Vicky Stergiopoulos (0000-0003-3941-9434, Centre for Addiction and Mental Health), Mary Rose Van Kesteren (Centre for Addiction and Mental Health), Donna E Stewart (0000-0002-8157-7746, Toronto General Hospital), Vivien Cappe (Centre for Addiction and Mental Health), Mona Gupta (0000-0001-8979-4772, Centre Hospitalier de l’Université de Montréal), Daniel Z Buchman (0000-0001-8944-6647, Centre for Addiction and Mental Health), Alexander I F Simpson (0000-0003-0478-2583, Centre for Addiction and Mental Health), David Castle (0000-0002-3075-1580, Centre for Addiction and Mental Health), Bartholemew Hugh Campbell (0009-0003-4840-1671, Centre for Addiction and Mental Health), Lisa D Hawke (0000-0003-1108-9453, Centre for Addiction and Mental Health, autor correspondente)
Ano2023
Volume331
Páginas116075
Data de publicação2023-08-01
Peer ReviewedSim
Open AccessSim
TipoARTICLE
PeriódicoSocial Science & Medicine (JOURNAL)
Identificadores do periódicoISSN: 0277-9536 • E-ISSN: 1873-5347
EditoraElsevier BV (PUBLISHER)
DOI10.1016/j.socscimed.2023.116075
PMID37441977
OpenAlexW4383164129
IdiomaEN
Citações recebidas1
Referências citadas40

Medical assistance in dying (MAiD) was introduced into Canadian legislation in 2016. Mental illness as the sole underlying medical condition (MI-SUMC) is excluded from eligibility; this is expected to change in 2024. Incurability, intolerable suffering, capacity to make healthcare decisions, and suicidality have been publicly debated in connection with mental illness. Few studies have explored the views of persons with mental illness on the introduction and acceptability of MAiD MI-SUMC; this study aimed to fill this gap. Thirty adults, residing in Ontario, Canada, who self-identified as living with mental illness participated. A semi-structured interview including a persona-scenario exercise was designed to discuss participants' views on MAiD MI-SUMC and when it could be acceptable or not. Reflexive thematic analysis was used to inductively analyze data. Codes and themes were developed after extensive familiarization with the dataset. A lived-experience advisory group was engaged throughout the study. We identified six themes: The certainty of suffering; Is there a suffering threshold to be met? The uncertainty of mental illness; My own limits, values, and decisions; MAiD MI-SUMCas acceptable when therapeutic means, and othersupports, have been tried to alleviate long-term suffering; and Between relief and rejection. These themes underline how the participants' lived experience comprised negative impacts caused by long-term mental illness, stigma, and in some cases, socioeconomic factors. The need for therapeutic and non-therapeutic supports was highlighted, along with unresolved tensions about the links between mental illness, capacity, and suicidality. Although not all participants viewed MAiD MI-SUMC as acceptable for mental illness, they autonomously embraced limits, values, and decisions of their own along their search for relief. Identifying individual and contextual elements in each person's experience of illness and suffering is necessary to understand diverse perspectives on MAiD MI-SUMC

Legislation · Mental health · Mental illness · Psychiatry · Qualitative research · Thematic analysis · Medicine · Mental Health and Patient Involvement · Mental Health and Psychiatry · Palliative Care and End-of-Life Issues · Psychology

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Obras citantes distintas1
Citações por ano0,33
Intervalo de citações2023 - 2023 (1)
Velocidade de citaçãohistorical
Altamente citadoNão
Tipos de citaçãoNeutras: 1
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