Pilgrimage in pediatric palliative care
The journey of caregivers
Bibliographic Data
| ID | 4602672 |
|---|---|
| Authors | María Gabriela Mendoza Martínez (Hospital Infantil de México Federico Gómez), Jéssica H Guadarrama-Orozco (0000-0002-4245-7661, Hospital Infantil de México Federico Gómez), Jessica Guadarrama Orozco, Ingris Peláez-Ballestas (0000-0001-5188-7375, Hospital General de México, corresponding author) |
| Year | 2024 |
| Volume | 343 |
| Pages | 116508 |
| Publication date | 2024-02-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Social Science & Medicine (JOURNAL) |
| Journal identifiers | ISSN: 0277-9536 • E-ISSN: 1873-5347 |
| Publisher | Elsevier BV (PUBLISHER) |
| DOI | 10.1016/j.socscimed.2023.116508 |
| PMID | 38242031 |
| OpenAlex | W4391003593 |
| Language | IT |
| References cited | 22 |
Admission of terminally ill patients into pediatric palliative care remains a challenge in Mexico and Latin America, despite the multiple benefits of early transfer. In this context the trajectories in search of health care of patients and caregivers have not been documented. Therefore, the objective of this study was to describe and analyze the experiences of primary caregivers and family members of pediatric patients in the palliative care unit of a Children's Hospital in Mexico, between October 19, 2019, and January 19, 2022. We used the framework of health pilgrimage, which comprises the transformative search of healing for patients, focusing on health barriers and the necessary displacement in search of care. With information obtained through interviews, we reconstructed the pilgrimages in search of health care navigating the Mexican healthcare system. Furthermore, we describe the experience of the primary caregiver accompanying the sick child during their journey to palliative care. We recount the adverse factors associated with this pilgrimage, such as the emotional and socioeconomic impact on primary and secondary caregivers
Context (archaeology · Environmental health · Family medicine · Health care · Palliative care · Pilgrimage · Population · Public health · Socioeconomic status · Grief, Bereavement, and Mental Health · History · Medicine · Nursing · Religion, Spirituality, and Psychology · Religious Tourism and Spaces
Structural Violence and Clinical Medicine
Image and pilgrimage in Christian culture
Leishmaniasis patients' pilgrimage to access health care in rural Bolivia
Structural violence and the need for compassionate use of methadone in Mexico
A experiência de adoecimento de mulheres com endometriose
Researching pilgrimage
Avaliação da peregrinação anteparto numa amostra de puérperas no Município do Rio de Janeiro, Brasil, 1999/2001
Palliative Professionals' Experiences of Receiving Gratitude
Hospital ethnography
Thematic Analysis
Predicament and Pilgrimage
| Citation velocity | historical |
|---|---|
| Highly cited | No |