Rethinking End-of-Life Care and Palliative Care
Learning From the Illness Trajectories and Lived Experiences of Terminally Ill Patients and Their Family Carers
Bibliographic Data
| ID | 4610341 |
|---|---|
| Authors | Maria Sercu (Ghent University, Ghent, Belgium, corresponding author), Ilse Beyens (Artsenpraktijk Zuid, 8790 Waregem, Belgium), Marc Cosyns (Ghent University, Ghent, Belgium), Fien Mertens (0000-0002-1449-8140, Ghent University, Ghent, Belgium), Myriam Deveugele (0000-0003-0078-7125, Ghent University, Ghent, Belgium), Peter Pype (0000-0003-2273-0250, Ghent University, Ghent, Belgium) |
| Year | 2018 |
| Volume | 28 |
| Issue | 14 |
| Pages | 2220-2238 |
| Publication date | 2018-12-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Qualitative Health Research (JOURNAL) |
| Journal identifiers | ISSN: 1049-7323 • E-ISSN: 1552-7557 |
| Publisher | SAGE Publications Inc (PUBLISHER) |
| DOI | 10.1177/1049732318796477 |
| PMID | 30234423 |
| OpenAlex | W2892253971 |
| Language | EN |
| Citations received | 10 |
| References cited | 54 |
Lynn conceptualized end-of-life (EoL) care for patients with advanced chronic-progressive illnesses as a combination of life-preserving/palliative care, the palliative aspect gradually becoming the main focus as death approaches. We checked this concept by exploring the advanced-terminal illness trajectories of 50 patients. Strategies heralding active therapy exhaustion were the catalyst for a participant's awareness of terminality, but were not a decisive factor in the divergent EoL care pathways we detected. The terms life-preserving and palliative do not adequately capture EoL care pathways due to their conceptual ambiguity. Conversely, the concept of EoL care encompassing three palliative care modalities ( life-prolonging palliative therapy, restorative palliative care, and symptom-oriented [only] palliative care), each harboring a different blend of life-preserving and symptom-comforting aspects, proved adequate. These modalities could run serially, oscillatorily, or parallelly, explaining the divergent EoL care pathways. We suggest an adjustment of the model of Lynn and reconsider the traditional palliative care concept
Advance care planning · Ambiguity · End-of-life care · Modalities · Palliative care · Sociology · Terminally ill · Treatment modality · Childhood Cancer Survivors' Quality of Life · Medicine · Nursing · Palliative Care and End-of-Life Issues · Patient Dignity and Privacy · Psychology
Hope, Trust, Medical Action, and Care
Terapia de Aceitação e Compromisso no contexto de cuidados paliativos
Envisager l’improbable, contourner l’inconcevable
Would you like me to take your hand?”
Diversity and Access to Palliative Care and Medical Assistance in Dying in an Urban Setting
Family dynamics and the transition to end‐of‐life caregiving
I Am Okay With It, But I Am Not Going to Do It
Understanding Experiences in Hospice
Decision-making and Poor Prognosis
Prise de décision en fin de vie
Heterogeneity and changes in preferences for dying at home
Patterns of Functional Decline at the End of Life
Making sense of qualitative data analysis
Trajectories of Disability in the Last Year of Life
An Empirical Examination of the Stage Theory of Grief
Quagol
Place of death in the population dying from diseases indicative of palliative care need
Using Joint Interviews to Add Analytic Value
Interviewing Separately or as Couples? Considerations of Authenticity of Method
Sentimental work in the technologized hospital
| Unique citing works | 10 |
|---|---|
| Citations per year | 1,67 |
| Citation span | 2020 - 2024 (5) |
| Citation velocity | recent |
| Highly cited | No |
| Citation types | Neutral: 10 |