Cancer-Related Decision-Making Among Adolescents, Young Adults, Caregivers, and Oncology Providers

Bibliographic Data

ID4612488
AuthorsKatie Darabos (0000-0002-3325-079X, Children’s Hospital of Philadelphia, Philadelphia, PA, USA, corresponding author), Allison J Berger (Children’s Hospital of Philadelphia, Philadelphia, PA, USA), Allison Berger (0000-0003-1217-2005, Children's Hospital of Philadelphia), Lamia P Barakat (0000-0002-0938-4712, Children’s Hospital of Philadelphia, Philadelphia, PA, USA), Lisa A Schwartz (0000-0002-7034-9553, Children’s Hospital of Philadelphia, Philadelphia, PA, USA)
Year2021
Volume31
Issue13
Pages2355-2363
Publication date2021-11-01
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueQualitative Health Research (JOURNAL)
Journal identifiersISSN: 1049-7323 • E-ISSN: 1552-7557
PublisherSAGE Publications Inc (PUBLISHER)
DOI10.1177/10497323211037654
PMID34382889
OpenAlexW3190845891
LanguageEN
Citations received2
References cited34

Decision-making among adolescents and young adults with cancer (AYA) is often complex, ongoing, and multifaceted, involving caregiver and oncology provider perspectives. Engagement in decision-making against the backdrop of normative developmental processes of acquiring autonomy and gaining independence contributes to the complexity of decision-making. Semi-structured qualitative interviews from 11 AYA and caregiver dyads and eight oncology providers examined decision-making processes with specific attention to the role of shared decision-making, cognitive and emotional processes, and coping with the decision-making experience. Five decision-making patterns were identified, with collaborative decision-making and AYA-driven decisions most commonly described. Utilizing hypothesis coding, AYA and caregivers explained how cognitive (i.e., pros/cons) and emotional (i.e., shock and fear of missing out) processes influenced cancer-related decisions. Coping strategies provided clarity and respite when engaged in decision-making. Our findings illuminate important implications for how to best support decision-making among AYA and caregivers, including the role oncology providers can play during decision-making

Autonomy · CLARITY · Cognition · Ethical decision · Normative · Psychiatry · Childhood Cancer Survivors' Quality of Life · Clinical Psychology · Medicine · Patient-Provider Communication in Healthcare · Pediatric Pain Management Techniques · Psychology · Social Psychology

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