Should We Tell the Truth? Why Families in Japan Chose to Tell Their Loved Ones They Were Victims of Iatrogenic HIV Infection

Bibliographic Data

ID4620073
AuthorsYukiko Seki (Saitama University, Saitama-shi, Saitama, Japan), Yoshihiko Yamazaki (0000-0002-0549-6346, University of Tokyo, Bunkyo-ku, Tokyo, Japan), Yuri Mizota (National Cancer Center, Chuo-ku, Tokyo, Japan), Yoji Inoue (Open University of Japan, Chiba-shi, Chiba, Japan)
Year2009
Volume19
Issue6
Pages723-731
Publication date2009-06-01
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueQualitative Health Research (JOURNAL)
Journal identifiersISSN: 1049-7323 • E-ISSN: 1552-7557
PublisherSAGE Publications Inc (PUBLISHER)
DOI10.1177/1049732309334250
PMID19332640
OpenAlexW2117339117
LanguageEN
Citations received7
References cited33

Japanese families traditionally avoid disclosing diagnoses of terminal illnesses to patients, seeking to protect the patient from emotional pain and shock. Using awareness theory, in this study we aimed to investigate the attitudes toward disclosure among bereaved families of Japanese hemophiliacs with iatrogenic HIV/AIDS. Semistructured interviews were conducted with 34 bereaved family members. Qualitative content analysis centered around three main issues: (a) family attitudes toward physician nondisclosure of HIV diagnosis; (b) family attitudes regarding the consequences of nondisclosure; and (c) family attitudes regarding the impact of nondisclosure on patient-family relationships. Our findings suggest that families favored disclosure because they felt that knowledge of the iatrogenic HIV infection would benefit the patient

Content analysis · Family medicine · Psychiatry · Qualitative research · Clinical Psychology · Medicine · Palliative Care and End-of-Life Issues · Patient Dignity and Privacy · Patient-Provider Communication in Healthcare · Psychology

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