Parents' Experiences of Caring for a Child With Autism Spectrum Disorder
Dados Bibliográficos
| ID | 4621507 |
|---|---|
| Autores | Anne-Marie Depape (Bloorview Research Institute, Holland Bloorview Kids Rehabilitation Hospital, Toronto, Ontario, Canada), Sally Lindsay (0000-0002-5903-290X, Bloorview Research Institute, Holland Bloorview Kids Rehabilitation Hospital, Toronto, Ontario, Canada) |
| Ano | 2015 |
| Volume | 25 |
| Fascículo | 4 |
| Páginas | 569-583 |
| Data de publicação | 2015-04-01 |
| Peer Reviewed | Sim |
| Open Access | Sim |
| Tipo | ARTICLE |
| Periódico | Qualitative Health Research (JOURNAL) |
| Identificadores do periódico | ISSN: 1049-7323 • E-ISSN: 1552-7557 |
| Editora | SAGE Publications Inc (PUBLISHER) |
| DOI | 10.1177/1049732314552455 |
| PMID | 25246329 |
| OpenAlex | W2156920995 |
| Idioma | EN |
| Citações recebidas | 46 |
| Referências citadas | 60 |
Autism spectrum disorder (ASD) is a developmental disorder involving abnormal communication, repetitive and restrictive interests, and impaired social functioning. ASD can have a profound impact on family life, including the roles and responsibilities that parents assume. In this metasynthesis, we explore the experiences of parents who care for a child with ASD. We undertook a thematic synthesis to integrate qualitative evidence, searching 10 electronic databases and reviewing 4,148 abstracts. We selected 31 articles for inclusion (involving 160 fathers and 425 mothers) and examined the articles using a constant comparative approach. We identified six themes: prediagnosis, diagnosis, family life adjustment, navigating the system, parental empowerment, and moving forward. Our findings can inform the development of programs and services for families, provide insight for health care workers who advocate on behalf of parents, and provide valuable information to parents, particularly those of children newly diagnosed with ASD
Autism · Autism spectrum disorder · Developmental psychology · Empowerment · Qualitative research · Thematic analysis · Autism Spectrum Disorder Research · Family and Disability Support Research · Infant Development and Preterm Care · Psychology · Social Psychology
Saúde mental e qualidade de vida de pais de pessoas com TEA durante a pandemia Covid-19
Towards a “New Mothering” Practice? The Life Experiences of Mothers Raising a Child with Autism in Urban Ethiopia
Behind the Scenes of Parents Nurturing a Child with Autism
A Journey towards Resilience
Exploring the Potential Impact of Training on Short-Term Quality of Life and Stress of Parents of Children with Autism
Psychological Distress and Perceived Burden Among Bangladeshi Parents of Children with Autism Spectrum Disorder
Like something supernatural in your house”
Effects of therapeutic horsemanship on caregiver stress scores of children with autism
Yebo, it was a great relief’
Tensions in Maternal Care for Children, Youth, and Adults With Autism Spectrum Disorder
An Exploration of the Perceptions of Parents of Autistic Children and Young People About Counselling for Their Own Well‐Being
Adaptation of the Parents Taking Action program for Diné (Navajo) parents of children with autism
Religious Coping of Muslim Mothers of Children with Autism Spectrum Disorder in Indonesia
“My child before and now”
Exposure to the earthquake with a child with autism
Single mother parenting of children with autism spectrum disorder
Family Resilience and Parental Stress in Families of Children with Autism
Predictors of quality of life for aging family caregivers of adults with autism
Relationship between caregiver burden and basic and instrumental activities of daily living among compound and noncompound caregivers
Experiences of Turkish mothers of children with autism
Career adaptability of parents of children with autism spectrum disorder
“Not be surprised by anything unusual”
“I'm Glad She Chose Me as Her Parent”
Psychosocial development measures modification for adolescents with intellectual and developmental disabilities
It Gave Me Some Hope.” Parent experiences with a new telehealth parent-mediated learning intervention for an autistic child
Barriers to Accessing Healthcare
The experiences of African immigrant mothers living in the United Kingdom with a child diagnosed with an autism spectrum disorder
Living in the Balance
Parenting a Child With Autism Spectrum Disorder
Parenting African American Children With Autism
Experiences of whānau Māori caring for a young child on the autism spectrum
Vulnerabilities Prompting Use of Technology and Screen by Mothers of Autistic Children in India
Trends in Autism Spectrum-Related Motherhood Research
Exploring the Lived Experiences of Fathers of Children on the Autism Spectrum
Care-giving experiences of parents of young people with PMLD and complex healthcare needs in the transition to adulthood years
I Paused My Life”
Structured Variation in Parental Beliefs about Autism
Explaining parents’ experiences of raising children with autism spectrum disorders in Lesotho
The Lived Experiences of Mothers of Children with the Autism Spectrum Disorders in Egypt
Parenting in context
Pilgrimage for an autism diagnosis
To raise a child with autism spectrum disorder
Indirectly Disabled yet Empowered by Revealing Vulnerability
A Mixed Methods Study of Relationship Satisfaction in Parents of Children With Down Syndrome
What is Parental Stress Connected to in Families of Children With Autism Spectrum Disorder? Implications for Parents' Interventions
The Ups and Downs of Down Syndrome
Systematic Synthesis of Qualitative Research
The relative risk and timing of divorce in families of children with an autism spectrum disorder.
The discovery of autism
Exploring teachers' strategies for including children with autism spectrum disorder in mainstream classrooms
Parenting children with autism spectrum disorders
Predictors of Postschool Employment Outcomes for Young Adults With Severe Disabilities
Everybody just freezes. Everybody is just embarrassed’
Theoretical propositions of life-span developmental psychology
Qualitative Health Research in the Era of Evidence-Based Practice
The social trajectory of illness
Living in a World of Our Own
Gender and coping
Challenges faced by parents of children diagnosed with autism spectrum disorder
Exploring stigma
Being epileptic
Perceptions of stigma
| Obras citantes distintas | 46 |
|---|---|
| Citações por ano | 4,6 |
| Intervalo de citações | 2016 - 2026 (11) |
| Velocidade de citação | current |
| Altamente citado | Não |
| Tipos de citação | Neutras: 45 |