Patient and Health Care Provider Needs and Preferences in Understanding Pharmacogenomic and Genomic Testing
A Meta-Data Analysis
Bibliographic Data
| ID | 4625802 |
|---|---|
| Authors | Sophie Veilleux (0000-0001-6232-6776, Université Laval, Québec, Québec, Canada, corresponding author), Maud Bouffard (0000-0001-8943-8057, Université Laval, Québec, Québec, Canada), Mijanou Bourque Bouliane (Université Laval, Québec, Québec, Canada) |
| Year | 2020 |
| Volume | 30 |
| Issue | 1 |
| Pages | 43-59 |
| Publication date | 2020-01-01 |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Qualitative Health Research (JOURNAL) |
| Journal identifiers | ISSN: 1049-7323 • E-ISSN: 1552-7557 |
| Publisher | SAGE Publications Inc (PUBLISHER) |
| DOI | 10.1177/1049732319858325 |
| PMID | 31322055 |
| OpenAlex | W2963174004 |
| Language | EN |
| Citations received | 1 |
| References cited | 71 |
Tests that feature genomic indicators can now be used to guide the pharmacological treatment of patients. To better identify the needs and preferences of patients and health care providers in facilitating their understanding of information related to such pharmacogenomic tests (PGx), a review of literature on knowledge translation and health literacy in the context of testing was conducted. Using a grounded theory-based approach, a comparative analysis of data from 36 studies meeting the criteria for the meta-data analysis has revealed the recurrence of three principal themes: (a) knowledge and understanding of genetics and pharmacogenomics; (b) experiences with genetic, genomic, or PGx testing (decision about the test, information delivery, and understanding of test results); and (c) educational/informational resources. This synthesis sheds light on each theme from the standpoint of both patients and health care providers and suggests avenues in which to direct efforts to support the introduction of pharmacogenomic tests in current practice
Bioinformatics · Data science · Health care · Health literacy · Knowledge management · Medical education · Personalized medicine · Pharmacogenomics · Political science · BRCA gene mutations in cancer · Computer Science · Genomics and Rare Diseases · Medicine · Pharmacogenetics and Drug Metabolism · Psychology · Pharmacology
Basics of qualitative research
Completing a Qualitative Project
Health Literacy
Meta-Study of Qualitative Health Research
The Shifting Perspectives Model of Chronic Illness
The meaning and the measure of health literacy
Closing the Loop
Low Health Literacy and Health Outcomes
Health literacy and public health
Public preferences for communicating personal genomic risk information
Metasynthesis
Translating Advances in Cardiogenetics Into Effective Clinical Practice
Mental Models of Cause and Inheritance for Type 2 Diabetes Among Unaffected Individuals Who Have a Positive Family History
Cultural Aspects of Healthy BRCA Carriers From Two Ethnocultural Groups
Toward a Better Understanding of Patient Health Literacy
Metatheory, Metamethod, Meta-Data-Analysis
| Citations per year | 0.5 |
|---|---|
| Citation span | 2024 - 2024 (1) |
| Highly cited | No |