Balancing Needs and Autonomy
The Involvement of Pregnant Women's Partners in Decisions About cfDNA
Bibliographic Data
| ID | 4627136 |
|---|---|
| Authors | Ruth M Farrell (0000-0002-8258-8842, Cleveland Clinic, Cleveland, Ohio, USA, corresponding author), Marybeth Mercer (0000-0002-7985-3369, Cleveland Clinic, Cleveland, Ohio, USA), Patricia K Agatisa (Cleveland Clinic, Cleveland, Ohio, USA), Marissa B Coleridge (Cleveland Clinic, Cleveland, Ohio, USA), Marissa Coleridge (0000-0003-0716-0050, Cleveland Clinic) |
| Year | 2019 |
| Volume | 29 |
| Issue | 2 |
| Pages | 211-221 |
| Publication date | 2019-01-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Qualitative Health Research (JOURNAL) |
| Journal identifiers | ISSN: 1049-7323 • E-ISSN: 1552-7557 |
| Publisher | SAGE Publications Inc (PUBLISHER) |
| DOI | 10.1177/1049732318796833 |
| PMID | 30182811 |
| OpenAlex | W2889915306 |
| Language | EN |
| Citations received | 6 |
| References cited | 36 |
Cell-free fetal DNA (cfDNA) screening is used to identify the presence of fetal genetic variants early in pregnancy. Patients' informed decision-making is central to the success of this new screen in clinical practice. Although research has focused on pregnant women's decision-making, little is known about partners' role and preferences as a member of the decision-making dyad. Using a grounded theory approach, this study analyzed 23 in-depth interviews to examine partners' perspectives about cfDNA screening and preferences with respect to their role in the decision-making process. Participants wished to be actively involved in testing decisions. They articulated a distinct set of needs and preferences in the decision-making process. Such involvement was hindered by several biological and logistical barriers. This study demonstrates the need to develop mechanisms that foster informed decision-making for cfDNA screening and related new reproductive genetic technologies that focus on not just the pregnant woman but also the decision-making dyad that includes her partner as well
Alternative medicine · Autonomy · Biology · Clinical decision making · Dyad · Family medicine · Grounded theory · Informed consent · MEDLINE · Patient participation · Political science · Qualitative research · Sociology · Assisted Reproductive Technology and Twin Pregnancy · Fetal and Pediatric Neurological Disorders · Medicine · Prenatal Screening and Diagnostics · Psychology · Social Psychology
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Techniques to Identify Themes
| Unique citing works | 6 |
|---|---|
| Citations per year | 0,86 |
| Citation span | 2019 - 2026 (8) |
| Citation velocity | current |
| Highly cited | No |
| Citation types | Neutral: 5 |