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Silent Endurance and Profound Loneliness

Socioemotional Suffering in African Americans Living With HIV in the Rural South

Bibliographic Data

ID4631017
AuthorsMargaret Shandor Miles (University of North Carolina at Chapel Hill, corresponding author), Malika Roman Isler (0000-0002-0967-7056, University of North Carolina at Chapel Hill), Bahby B Banks (University of North Carolina at Chapel Hill), Bahby Banks (University of North Carolina at Chapel Hill), Sohini Sengupta (0000-0002-3077-2883, University of North Carolina at Chapel Hill), Giselle Corbie-Smith (0000-0003-0737-6775, University of North Carolina at Chapel Hill)
Year2011
Volume21
Issue4
Pages489-501
Publication date2011-04-01
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueQualitative Health Research (JOURNAL)
Journal identifiersISSN: 1049-7323 • E-ISSN: 1552-7557
PublisherSAGE Publications Inc (PUBLISHER)
DOI10.1177/1049732310387935
PMID21041516
PMCIDPMC3073239
OpenAlexW2137551973
LanguageEN
Citations received18
References cited51

We explored how community responses to HIV contribute to distress in African Americans living with HIV in the rural South of the United States. We listened to the voices of community members through focus groups and African Americans with HIV through interviews. Community avoidance of HIV, negative views of HIV, and discriminatory behavior powerfully affected the distress of people living with HIV (PLWH). Ongoing distress, coupled with limited support, led to a life in which many PLWH endured their pain in silence and experienced profound loneliness. We conceptualized their experiences as socioemotional suffering-the hidden emotional burden and inner distress of not only living with HIV, a complex serious illness, but also with the societal attitudes and behaviors that are imposed on the illness and on PLWH. To improve the quality of life and health of PLWH, we cannot focus solely on the individual, but must also focus on the local community and society as a whole

Distress · Focus group · Loneliness · Psychiatry · Psychotherapist · Silence · Socioemotional selectivity theory · Sociology · Clinical Psychology · HIV, Drug Use, Sexual Risk · HIV/AIDS Research and Interventions · Homelessness and Social Issues · Medicine · Psychology · Gerontology

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Unique citing works18
Citations per year1,29
Citation span2012 - 2024 (13)
Citation velocityrecent
Highly citedNo
Citation typesNeutral: 17

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