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Living in a World of Our Own

The Experience of Parents Who Have a Child With Autism

Dados Bibliográficos

ID4633653
AutoresRoberta L Woodgate (0000-0002-7176-2390, University of Manitoba, Winnipeg, Manitoba, Canada), Christine Ateah (University of Manitoba, Winnipeg, Manitoba, Canada), Christine A Ateah (0000-0001-7093-7999, University of Manitoba), Loretta Secco (0000-0002-0881-4274, Cape Breton University, Sydney, Nova Scotia, Canada)
Ano2008
Volume18
Fascículo8
Páginas1075-1083
Data de publicação2008-08-01
Peer ReviewedSim
Open AccessSim
TipoARTICLE
PeriódicoQualitative Health Research (JOURNAL)
Identificadores do periódicoISSN: 1049-7323 • E-ISSN: 1552-7557
EditoraSAGE Publications Inc (PUBLISHER)
DOI10.1177/1049732308320112
PMID18650563
OpenAlexW2146750786
IdiomaEN
Citações recebidas67
Referências citadas23

In this article, we discuss findings of a hermeneutic phenomenological study that sought to describe the experiences of parents who have a child with autism. Qualitative interviews were conducted with parents from 16 families of children with autism residing in a western Canadian province. "Living in a world of our own" emerged as the essence of the parents' experiences. In "living in a world of our own," parents described a world of isolation. Three themes representing the essential challenging elements of the parents' experiences included vigilant parenting, sustaining the self and family, and fighting all the way. Although much is known about the fundamental importance of support to parents of children with chronic conditions and/or disabilities, findings from this study indicate that knowledge has not been adequately transferred to the care of children with autism

Autism · Developmental psychology · Hermeneutic phenomenology · Lived experience · Psychotherapist · Qualitative research · Sociology · Typically developing · Autism Spectrum Disorder Research · Family and Disability Support Research · Infant Development and Preterm Care · Psychology

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Obras citantes distintas67
Citações por ano4,19
Intervalo de citações2010 - 2026 (17)
Velocidade de citaçãocurrent
Altamente citadoNão
Tipos de citaçãoNeutras: 66
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