Beyond Patient-Provider Relationships
Expanding the Roles and Boundaries of Families during Patient End-of-Life
Bibliographic Data
| ID | 4634849 |
|---|---|
| Authors | Amber Thompson (0000-0002-0128-0089, Sociology, University of Utah, Salt Lake City, UT, USA, corresponding author), Rebecca L Utz (0000-0001-7734-7676, University of Utah), Rebecca Utz (Sociology, University of Utah, Salt Lake City, UT, USA) |
| Year | 2022 |
| Volume | 32 |
| Issue | 11 |
| Pages | 1620-1634 |
| Publication date | 2022-09-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Qualitative Health Research (JOURNAL) |
| Journal identifiers | ISSN: 1049-7323 • E-ISSN: 1552-7557 |
| Publisher | SAGE Publications Inc (PUBLISHER) |
| DOI | 10.1177/10497323221111249 |
| PMID | 35772971 |
| OpenAlex | W4283757851 |
| Language | EN |
| Citations received | 1 |
| References cited | 58 |
Role conflict and strain occur when healthcare providers are required to cross boundaries, either voluntarily or involuntarily, to meet the needs of their dying patients. This research is an unobtrusive digital ethnography of a publicly accessible online forum for healthcare providers ( N = 242 posts); it explores the boundaries set by families and healthcare providers, and identifies how healthcare providers navigate and which circumstances require them to sometimes cross these professional boundaries. Results indicate that patient-and-family-centered care may not be fully achieved due to the ambiguity in the expected roles played by both families and healthcare providers during patient death and dying. Grounded in data, an expanded model of the therapeutic alliance, which includes the family, is suggested
Alliance · Ambiguity · End-of-life care · Ethnography · Grounded theory · Health care · Internet privacy · Palliative care · Political science · Qualitative research · Sociology · Computer Science · Family and Patient Care in Intensive Care Units · Medicine · Nursing · Palliative Care and End-of-Life Issues · Patient-Provider Communication in Healthcare · Psychology
Role models in career development
The Values and Value of Patient-Centered Care
The Interpretation of Cultures
Role Theory
Engagement without entanglement
The ‘Connection’ Health Care Providers Make with Dying Patients
Patient‐centred care is a way of doing things
Doing Ethnography on Social Media
Roles of Physicians and Health Care Systems in “Difficult” Clinical Encounters
Special issue
Doing” healthcare at end-of-life
Alignment and mismatch in role relations at end-of-life
Examining the transitions between living and dying roles at end-of-life
Simians, Cyborgs, and Women
Do Doctors Grieve
Person-Centered Care and the Therapeutic Alliance
Hermeneutic inquiry in the study of human conduct
A General Inductive Approach for Analyzing Qualitative Evaluation Data
Who am I? Narration and its contribution to self and identity
A Theory of Role Strain
The Place of Inter-Rater Reliability in Qualitative Research
Recent Developments in Role Theory
| Unique citing works | 1 |
|---|---|
| Citations per year | 0,5 |
| Citation span | 2024 - 2024 (1) |
| Citation velocity | recent |
| Highly cited | No |
| Citation types | Neutral: 1 |