On Being Dependent on Home Mechanical Ventilation

Depictions of Patients' Experiences Over Time

Bibliographic Data

ID4638491
AuthorsBerit Lindahl (0000-0002-0047-9723, Umeå University), Per-Olof Sandman, Per‐Olof Sandman, B H Rasmussen (0000-0003-0830-6058, Umeå University)
Year2006
Volume16
Issue7
Pages881-901
Publication date2006-09-01
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueQualitative Health Research (JOURNAL)
Journal identifiersISSN: 1049-7323 • E-ISSN: 1552-7557
PublisherSAGE Publications Inc (PUBLISHER)
DOI10.1177/1049732306288578
PMID16894222
OpenAlexW2126257973
LanguageEN
Citations received9
References cited36

In this study, the authors describe the meanings of experiences of being dependent on a ventilator (HMV) and living at home as narrated by 13 people who had been using a ventilator via a mask or tracheostomy for half a year. The analyses revealed various movements across time toward the goal of using the ventilator successfully, and some narratives depicted suffering caused by care. The analyses also yielded different representations of embodiment. These findings were abstracted into two contrasting meanings of the experience of using HMV over time: a closing in or an opening up of the lived body, oneself, to other people and to the world. The authors illustrate this interpretation with two images. Ignorance and negative attitudes on the part of professionals working and/or managing care in the patients' homes are interpreted as causing suffering and intensifying a closed-in mode of being

Aesthetics · Art · Developmental psychology · Epistemology · Ignorance · Linguistics · Literature · Lived experience · Narrative · Psychotherapist · Aging and Gerontology Research · Education, Healthcare and Sociology Research · Geriatric Care and Nursing Homes · Medicine · Nursing · Philosophy · Psychology · Social Psychology

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