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"I Want to Do Something" - Exploring What Makes Activities Meaningful for Community-Dwelling People Living With Dementia

A Focused Ethnographic Study

Bibliographic Data

ID4642952
AuthorsEmma Harding (0000-0001-9675-2335, Dementia Research Centre, Department of Neurodegenerative Disease, UCL Queen Square Institute of Neurology, UCL, London, UK, corresponding author), Mary Pat Sullivan (0000-0001-9514-0783, Nipissing University), Paul M Camic (0000-0002-4444-6544, Dementia Research Centre, Department of Neurodegenerative Disease, UCL Queen Square Institute of Neurology, UCL, London, UK), Keir X X Yong, Keir Yong (0000-0002-9708-3599, Dementia Research Centre, Department of Neurodegenerative Disease, UCL Queen Square Institute of Neurology, UCL, London, UK), Joshua Stott (0000-0003-1361-053X, University College London), Sebastian J Crutch (0000-0002-4160-0139, Dementia Research Centre, Department of Neurodegenerative Disease, UCL Queen Square Institute of Neurology, UCL, London, UK)
Year2024
Volume34
Issue13
Pages1286-1302
Publication date2024-11-01
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueQualitative Health Research (JOURNAL)
Journal identifiersISSN: 1049-7323 • E-ISSN: 1552-7557
PublisherSAGE Publications Inc (PUBLISHER)
DOI10.1177/10497323241239487
PMID38648467
OpenAlexW4394993886
LanguageEN
Citations received7
References cited61

Supporting ageing in place, quality of life, and activity engagement are public health priorities for people with dementia. The importance of maintaining opportunities for meaningful activities has been widely acknowledged for those with dementia in long-term care, but little is known about what makes activities meaningful for, and how they are experienced by, people with different types of dementia in their own homes. This study used focussed ethnographic methods to explore the motivations and meanings of everyday activity engagement within the homes of 10 people with memory-led Alzheimer's disease and 10 people with posterior cortical atrophy. While participants' interactions with their everyday environments were challenged by their diagnoses, they were all finding ways to continue meaning-making via various activities. The main findings are encapsulated in three themes: (1) The fun and the function of activities; (2) Reciprocities of care, and (3) The constitution and continuity of (a changing) self. Ongoing engagement with both fun and functional activities offered participants living with different dementias opportunities to connect with others, to offer care and support (as well as receive it), and to maintain a sense of self and identity. Implications are discussed regarding the development and delivery of tailored interventions and support to enable continued engagement in meaningful activities for people with different types of dementia living in the community

Activities of daily living · Dementia · Disease · Ethnography · Everyday life · Psychiatry · Psychological intervention · Psychotherapist · Sociology · Dementia and Cognitive Impairment Research · Medicine · Mental Health and Patient Involvement · Psychology · Stroke Rehabilitation and Recovery · Gerontology

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    Open Access•Golnaz Atefi, Wolfgang Viechtbauer et al.•Journal of Contextual Behavioral…•2025

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    Open Access•Carolina Rego Chaves Dias, Saulo Vasconcelos Rocha et al.•SSM - Mental Health•2025

  • Social and physical environments in dementia-inclusive societies

    Open Access•L Verdoes, Jeroen Dikken et al.•Cities•2026

  • Adaptable and shared

    Open Access•Ulla Halonen, Marja Lönnroth‐olin et al.•Journal of Aging Studies•2026

  • Moments of resonance

    Open Access•Julie Bønnelycke, Lars Pynt Andersen et al.•Memory Studies•2026

  • Making Sense of Everyday Life

    Susie Scott•Making Sense of Everyday Life•2013

  • Ethnography in Nursing Research

    Janice M Roper, Janice Roper et al.•Ethnography in Nursing Research•2000

  • Dimensions of Meaning in the Occupations of Daily Life

    Open Access•Karen Whalley Hammell•Canadian Journal of Occupational…•2004

  • The Cultural Geography Reader

    T R Oakes, Timothy Oakes et al.•The cultural geography reader•2008

  • Towards capturing meaningful outcomes for people with dementia in psychosocial intervention research

    Open Access•Laila Øksnebjerg, Ana Diaz‐Ponce et al.•Health Expectations•2018

  • A critical review of the literature on social and leisure activity and wellbeing in later life

    Open Access•Kathryn Betts Adams, SYLVIA LEIBBRANDT et al.•Ageing and Society•2011

  • Theorising everyday life after acquired brain injury

    Jonathan Harvey•Disability & Society•2017

  • Recognising the agency of people with dementia

    Geraldine Boyle•Disability & Society•2014

  • Health and social care practitioners' understanding of the problems of people with dementia‐related visual processing impairment

    Open Access•Anne McIntyre, Emma Harding et al.•Health & Social Care in the…•2019

  • The lived body in dementia

    Open Access•Alison Phinney, Catherine A Chesla•Journal of Aging Studies•2003

  • Baking together—the coordination of actions in activities involving people with dementia

    Open Access•Ali Reza Majlesi, Anna Ekström•Journal of Aging Studies•2016

  • Accomplishing Care at Home for People With Dementia

    Open Access•Kate Briggs, Janet Askham et al.•Qualitative Health Research•2003

  • Verification Strategies for Establishing Reliability and Validity in Qualitative Research

    Open Access•Janice M Morse, Michael Barrett et al.•International Journal of…•2002

  • Videography

    Open Access•H Knoblauch, Bernt Schnettler•Qualitative Research•2012

  • Ageing in place and technologies of place

    Open Access•Katie Brittain, Katherine Brittain et al.•Sociology of Health & Illness•2010

  • What Is Agency

    Mustafa Emirbayer, Ann Mische•American Journal of Sociology•1998

  • Short-Term Ethnography

    Open Access•Sarah Pink, J Morgan•Symbolic Interaction•2013

Unique citing works7
Citations per year3.5
Citation span2024 - 2026 (3)
Citation velocitycurrent
Highly citedNo
Citation typesNeutral: 5

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