Exploring the Self-Care Experiences of Adults With Heart Failure in Australia

A Qualitative Study

Dados Bibliográficos

ID4643758
AutoresRebecca Nourse (0000-0002-6410-7064, Deakin University, autor correspondente), Lars Kayser (0000-0002-0909-4088, Department of Public Health, University of Copenhagen, Copenhagen, Denmark), Ralph Maddison (0000-0001-8564-5518, Deakin University)
Ano2025
Páginas10497323251367936-10497323251367936
Data de publicação2025-09-08
Peer ReviewedSim
Open AccessSim
TipoARTICLE
PeriódicoQualitative Health Research (JOURNAL)
Identificadores do periódicoISSN: 1049-7323 • E-ISSN: 1552-7557
EditoraSAGE Publications Inc (PUBLISHER)
DOI10.1177/10497323251367936
PMID40920561
OpenAlexW4414056430
IdiomaEN
Referências citadas48

Heart failure is a complex, progressive syndrome with significant impacts on quality of life and daily functioning. This study aimed to understand the self-care experiences of community-dwelling adults with heart failure in Australia while also portraying the context and impact of these experiences on participants. We focused on patients' accounts of self-care, irrespective of their alignment with existing definitions or guidelines. A qualitative approach using in-depth interviews was chosen to capture the richness of lived experience. Nine participants with heart failure were recruited through advertisements distributed by community heart support organizations and social media to take part in a one-to-one online or telephone interview. Data were analyzed using reflexive thematic analysis informed by a critical realist perspective. Three themes were developed, offering insight into how participants experienced self-care: "self-care as balancing the visibility and invisibility of living with heart failure," "self-care as developing understanding and being (mis)understood," and "self-care as navigating relationships." This study shows that people with heart failure use self-care in ways that differ from traditional clinical expectations. The findings suggest that current heart failure management approaches may be missing crucial aspects of how people actually live with this condition. Participants were equally concerned with managing their social identity, maintaining family relationships, and integrating self-care into their existing life routines. Effective interventions need to address these broader concerns, not just clinical outcomes

Heart failure · Psychological intervention · Qualitative research · Reflexivity · Thematic analysis · Cardiac Health and Mental Health · Cardiovascular Issues in Pregnancy · Heart Failure Treatment and Management