A Netnographic Approach
Views on Assisted Dying for Individuals With Dementia
Bibliographic Data
| ID | 4644046 |
|---|---|
| Authors | Aida Dehkhoda (0000-0002-0044-6112, The University of Auckland, Auckland, New Zealand, corresponding author), R Glynn Owens (0000-0002-8343-8387, The University of Auckland, Auckland, New Zealand), Phillipa J Malpas (0000-0002-1345-8630, The University of Auckland, Auckland, New Zealand) |
| Year | 2020 |
| Volume | 30 |
| Issue | 13 |
| Pages | 2077-2091 |
| Publication date | 2020-11-01 |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Qualitative Health Research (JOURNAL) |
| Journal identifiers | ISSN: 1049-7323 • E-ISSN: 1552-7557 |
| Publisher | SAGE Publications Inc (PUBLISHER) |
| DOI | 10.1177/1049732320925795 |
| PMID | 32564696 |
| OpenAlex | W3036674880 |
| Language | EN |
| Citations received | 4 |
| References cited | 77 |
Alongside increasing rates of dementia diagnoses worldwide, efforts to seek alternative end-of-life options also increase. While the concept of assisted dying remains controversial, the discussion around its provision for people with dementia raises even more sensitivity. In this study, we explored how the practice of assisted dying for people with dementia is conceptualized and understood using the shared narratives of online contributors. An observational netnography over 20 months was carried out within five open Facebook communities. Thematic analysis was conducted on 1,007 online comments about assisted dying and dementia. Results reflected four central themes and five subthemes: understanding dementia; understanding assisted dying laws; caregivers' feelings; and moral/personal dilemmas. Findings reveal that the majority of communities' contributors fear developing dementia. They support the provision of advance euthanasia directives-written by competent patients-to prevent unnecessary suffering, and protect patients' wishes and freedom of choice when decision-making competency is lost
Assisted suicide · Dementia · Feeling · Narrative · Netnography · Observational study · Political science · Psychiatry · Psychotherapist · Qualitative research · Social media · Sociology · Thematic analysis · Grief, Bereavement, and Mental Health · Law · Medicine · Palliative Care and End-of-Life Issues · Patient Dignity and Privacy · Psychology · Social Psychology
Meaning reconstruction & the experience of loss.
Ethical issues in qualitative research on internet communities
Ethics of Social Media Research
Dementia prevention, intervention, and care
Netnography
Three dimensions of the public sphere on Facebook
Studying the amateur artist
“But the data is already public”
Netnography
Grief, commiseration, and consumption following the death of a celebrity
The people speak
Sex as Leisure in Later life
Leisure in Coping With Depression
Informed consent and secondary data
Using thematic analysis in psychology
Purposeful Sampling in Qualitative Research Synthesis
Changes in Family Dynamics in Caregiving for People With Dementia in South Korea
Caregivers' Experiences Seeking Hospice Care for Loved Ones With Dementia
Broadcasting War Trauma
Barriers to Qualitative Dementia Research
A comparison of attitudes towards end-of-life decisions
Netnography
Internet Ethnography
Examining the Virtual Subculture of Johns
| Citations per year | 0.8 |
|---|---|
| Citation span | 2021 - 2024 (4) |
| Highly cited | No |