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When Family-Centered Care Is Challenged by Infectious Disease

Pediatric Health Care Delivery During the Sars Outbreaks

Bibliographic Data

ID4646401
AuthorsDonna Koller (0000-0001-8561-5618, Hospital for Sick Children), Donna F Koller, David B Nicholas (Hospital for Sick Children, Toronto, Canada), David Nicholas (0000-0003-4480-322X, Hospital for Sick Children, Toronto, Canada.), Robyn Salter Goldie (Division of Infectious Diseases at the Hospital for Sick Children, Toronto, Canada.), R E Gearing (0000-0001-6916-9996, Hospital for Sick Children), Robin Gearing (Division of Psychiatry at the Hospital for Sick Children, Toronto, Canada.), Enid K Selkirk (0000-0002-6624-8194, Social Work Department at the Hospital for Sick Children, Toronto, Canada.)
Year2006
Volume16
Issue1
Pages47-60
Publication date2006-01-01
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueQualitative Health Research (JOURNAL)
Journal identifiersISSN: 1049-7323 • E-ISSN: 1552-7557
PublisherSAGE Publications Inc (PUBLISHER)
DOI10.1177/1049732305284010
PMID16317176
OpenAlexW2162228749
LanguageEN
Citations received15
References cited14

In this ethnographic study, the authors examined the experiences and perspectives of children hospitalized because of SARS (severe acute respiratory syndrome), their parents, and pediatric health care providers. The sample included 5 children, 10 parents, and 8 health care providers who were directly affected by SARS during the time of the outbreaks and extreme infection control procedures. The data analyses illuminated a range of perceived experiences for this triadic sample. Issues related to social isolation due to infection control precautions were predominant. Themes included emotional upheaval, communication challenges, and changes in parental and professional roles. These findings reveal the cogent effects of SARS on family-centered care. The notion of providing family-centered care within an environment plagued by an infectious outbreak suggests an ominously difficult task. Efforts must be made to optimize family-centered care despite obstacles. The authors suggest effective clinical approaches in the event of future outbreaks

2019-20 coronavirus outbreak · Disease · Family centered care · Family medicine · Health care · Health care delivery · Outbreak · Pathology · COVID-19 Impact on Reproduction · Family and Patient Care in Intensive Care Units · Infant Development and Preterm Care · Medicine · Nursing · Virology

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Unique citing works15
Citations per year0,79
Citation span2007 - 2026 (20)
Citation velocitycurrent
Highly citedNo
Citation typesNeutral: 15

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