Development and Implementation of the Family Caregiver Decision Guide
Bibliographic Data
| ID | 4656196 |
|---|---|
| Authors | Chris A Robinson (0000-0003-4576-4218, The University of British Columbia, Kelowna, British Columbia, Canada, corresponding author), Joan L Bottorff (0000-0001-9724-5351, The University of British Columbia, Kelowna, British Columbia, Canada), Barbara Pesut (0000-0002-1063-7190, The University of British Columbia, Kelowna, British Columbia, Canada), Janelle Zerr (The University of British Columbia, Kelowna, British Columbia, Canada) |
| Year | 2020 |
| Volume | 30 |
| Issue | 2 |
| Pages | 303-313 |
| Publication date | 2020-01-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Qualitative Health Research (JOURNAL) |
| Journal identifiers | ISSN: 1049-7323 • E-ISSN: 1552-7557 |
| Publisher | SAGE Publications Inc (PUBLISHER) |
| DOI | 10.1177/1049732319887166 |
| PMID | 31744378 |
| OpenAlex | W2989620747 |
| Language | EN |
| Citations received | 2 |
| References cited | 36 |
Care provided by family is the backbone of palliative care in Canada. The critical roles performed by caregivers can at the same time be intensely meaningful and intensely stressful. However, experiences of caregiving can be enhanced when caregivers feel they are making informed and reflective decisions about the options available to them. With this in mind, the purpose of this five-phase research project was to create a Family Caregiver Decision Guide (FCDG). The Guide entails four steps: thinking about the current caregiving situation, imagining how the caregiving situation may change, exploring available options, and considering best options if caregiving needs change. The FCDG was based on available evidence and was developed and refined using focus groups, cognitive interviewing, and a feasibility and acceptability study. Finally, an interactive version of the Guide was created for online use ( https://www.caregiverdecisionguide.ca ). In this article, we describe the development, evaluation, and utility of the FCDG
Cognition · Cognitive interview · Family caregivers · Focus group · Interview · Medical education · Palliative care · Sociology · Applied Psychology · Medicine · Nursing · Palliative Care and End-of-Life Issues · Patient Dignity and Privacy · Patient-Provider Communication in Healthcare · Psychology
Early Palliative Care for Patients with Metastatic Non–Small-Cell Lung Cancer
Evidence summaries
Developing a quality criteria framework for patient decision aids
Families Caring for an Aging America
End-of-Life Caregiver Social Support Activation
Family Caregivers' Health in Connection With Providing Care
The Changing Nature of Guilt in Family Caregivers
It's Like We're Grasping at Anything
| Unique citing works | 2 |
|---|---|
| Citations per year | 0,4 |
| Citation span | 2021 - 2022 (2) |
| Citation velocity | historical |
| Highly cited | No |
| Citation types | Neutral: 2 |