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Resolving to Go Forward

The Experience of Latino/Hispanic Family Caregivers

Bibliographic Data

ID4661333
AuthorsKathleen T Lucke (University at Buffalo, Buffalo, New York, USA), Hernando Martinez (0000-0002-2184-374X, University Hospital, San Antonio, Texas, USA), Hernando Alejandro Martínez, Thomas B Mendez (University of Texas, Galveston, Texas, USA), Lyda C Arévalo-Flechas (Texas State University, Round Rock Campus, Texas, USA), Lyda Arevalo-Flechas (0000-0002-1580-3805, Texas State University)
Year2013
Volume23
Issue2
Pages218-230
Publication date2013-02-01
Open AccessYes
TypeARTICLE
VenueQualitative Health Research (JOURNAL)
Journal identifiersISSN: 1049-7323 • E-ISSN: 1552-7557
PublisherSAGE Publications Inc (PUBLISHER)
DOI10.1177/1049732312468062
PMID23258419
OpenAlexW2100132903
LanguageEN
Citations received7
References cited37

Little is known about the experiences and needs of family caregivers of Latino/Hispanic individuals with spinal cord injury (SCI) during the early years of recovery. The purpose of this grounded theory study was to describe the experiences and identify the informational, decisional, interpersonal, and resource support needs of family caregivers of newly injured Latino/Hispanic individuals with SCI during the first 2 years after undergoing rehabilitation. "Resolving to go forward" was the core category that emerged from two simultaneous processes of "learning to care for" and "getting through" during the initial years as the primary informal caregiver. Most caregivers felt alone and abandoned after the injured person returned home, and experienced barriers to services and resources primarily because of language issues and economic status. We recommend that researchers develop and evaluate culturally appropriate, informal caregiving models to improve outcomes for both Latino individuals with SCI and their family caregivers

Grounded theory · Interpersonal communication · Physical therapy · Qualitative research · Sociology · Family and Disability Support Research · Family and Patient Care in Intensive Care Units · Medicine · Nursing · Psychology · Social Psychology · Spinal Cord Injury Research · Rehabilitation

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Citations per year0.7
Citation span2016 - 2025 (10)
Highly citedNo

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