There Were Moments We Wished She Could Just Die
The Highly Gendered Burden of Nodding Syndrome in Northern Uganda
Bibliographic Data
Nodding Syndrome (NS) occurs within a wide spectrum of epilepsies seen in onchocerciasis endemic areas of sub-Saharan Africa. It has debilitating consequences on affected individuals and increases the socio-economic, physical and psychological burden on care-givers and their households, diminishing their standing within the community. Social science research on the disproportionate burden of the disease on females is limited. Based on ethnographic research over 3 years in northern Uganda, we explored the burden of being ill and care-giving for persons with NS from a gendered perspective. We found that NS-affected females were at greater risk of physical and psychological abuse, sexual violence, unwanted pregnancies, sexually transmitted infections and stigma, in a context of deteriorating socio-economic conditions. Primary care-givers of the NS-affected, mostly women, struggled to make ends meet and were subjected to stigma and abandonment. Targeted interventions, including legal protection for affected females, stigma reduction, and psycho-social and financial support are needed
Environmental health · Family medicine · Geography · Poison control · Psychiatry · Psychological intervention · Sexual abuse · Social stigma · Suicide prevention · Insect symbiosis and bacterial influences · Medicine · Parasite Biology and Host Interactions · Parasitic Diseases Research and Treatment · Psychology
Violence, Gender, and Subjectivity
Legislating Gender and Sexuality in Africa
The Sage Encyclopedia of Social Science Research Methods
Prevalence of intimate partner violence
Law, custom, and social order
‘You sit in fear’
Gulu in War … and Peace? The Town as Camp in Northern Uganda
Sexual violence and general functioning among formerly abducted girls in Northern Uganda
Family Caregivers in Rural Uganda
Parenting Among Mothers Who Experienced Child Sexual Abuse
War, Displacement and Productive Occupations in Northern Uganda
Nodding syndrome or disease? On the conceptualization of an illness-in-the-making
Reconstructing fragile lives
Reframing conflict-related sexual and gender-based violence
The second front
Gender, poverty and violence
The rise and fall of nodding syndrome in public discourse
Kony's Message
Mixed Methods Research
It Went to the Very Heart of Who I Was as a Woman
What They Tell You to Forget
The Changing Nature of Guilt in Family Caregivers
Stressors and Resources of Caregivers of Patients With Incurable Progressive Illness in Sub-Saharan Africa
My Husband is No Husband to Me
Women survivors and their children born of wartime sexual violence in northern Uganda
Universal classifications, national approaches and specific situations
| Citation velocity | historical |
|---|---|
| Highly cited | No |