Acceptance and Decision Making in Amyotrophic Lateral Sclerosis From a Life-Course Perspective
Bibliographic Data
| ID | 4663378 |
|---|---|
| Authors | Geraldine Foley (0000-0001-7952-9246, Trinity College Dublin, Dublin, Ireland), Virpi Timonen (0000-0001-7061-3943, Trinity College Dublin, Dublin, Ireland), Orla Hardiman (0000-0003-2610-1291, Trinity College Dublin, Dublin, Ireland) |
| Year | 2014 |
| Volume | 24 |
| Issue | 1 |
| Pages | 67-77 |
| Publication date | 2014-01-01 |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Qualitative Health Research (JOURNAL) |
| Journal identifiers | ISSN: 1049-7323 • E-ISSN: 1552-7557 |
| Publisher | SAGE Publications Inc (PUBLISHER) |
| DOI | 10.1177/1049732313516545 |
| PMID | 24336481 |
| OpenAlex | W2097662556 |
| Language | EN |
| Citations received | 6 |
| References cited | 41 |
Researchers have explored perceptions of health care services among people with amyotrophic lateral sclerosis (ALS), but little is known about how and why people with ALS engage with services. We undertook a grounded theory study to identify key psychosocial processes that underpin how and why people with ALS engage with health care services. We conducted in-depth interviews with 34 participants sampled from the Irish ALS population-based register. We found that age and life stage shaped participants' decision making about care. Participants in later life were more accepting of ALS and of death than young and middle-aged participants. Family was the primary context to how participants engaged with services, and their decisions about care were shaped by parenthood at different life stages. Health care professionals need to be attuned to the impact of life-course trajectories and family relations on the decisions people with ALS make about their care
Amyotrophic lateral sclerosis · Developmental psychology · Disease · Grounded theory · Health care · Life course approach · Psychiatry · Psychosocial · Qualitative research · Sociology · Amyotrophic Lateral Sclerosis Research · Family Support in Illness · Medicine · Neurogenetic and Muscular Disorders Research · Nursing · Psychology · Gerontology
Using Grounded Theory Method to Capture and Analyze Health Care Experiences
Transformed Parenthood in the Face of ALS
“Who Will I Be?”
Decision Making About Gastrostomy and Noninvasive Ventilation in Amyotrophic Lateral Sclerosis
Confused About Theoretical Sampling? Engaging Theoretical Sampling in Diverse Grounded Theory Studies
Interviewing as a Vehicle for Theoretical Sampling in Grounded Theory
Growing old
Integrating Varieties of Life Course Concepts
Aging and Attentional Bias for Death related and General Threat-related Information
Considering Life Course Concepts
Living with motor neurone disease
Expanded, but not regulated
Ventilator dependence and expressions of need
Encountering the downward phase
Cerebral implants and Parkinson's disease
Revisiting biographical disruption
Clarifying the Relationship Between Parenthood and Depression
Parenthood, Childlessness, and Well-Being
Discrepancies in Parent's and Adult Child's Reports of Support and Contact
Families in the Life Course
Biographical disruption, abruption and repair in the context of Motor Neurone Disease
The significance and consequences of having painful and disabled joints in older age
Illness in the Context of Older Age
Metastatic Cancer and Mothering
| Citations per year | 0.55 |
|---|---|
| Citation span | 2015 - 2025 (11) |
| Highly cited | No |