African American and Non-African American Patients' and Families' Decision Making About Renal Replacement Therapies

Bibliographic Data

ID4667606
AuthorsJohanna Sheu (Johns Hopkins University, Baltimore, Maryland, USA), Patti L Ephraim (0009-0005-9178-0413, Johns Hopkins University, Baltimore, Maryland, USA), Neil R Powe (0000-0003-2347-3620, University of California at San Francisco, San Francisco, California, USA), Hamid Rabb (0000-0002-4761-1103, Johns Hopkins University, Baltimore, Maryland, USA), Mikiko Senga (0000-0003-3041-2236, Johns Hopkins University, Baltimore, Maryland, USA), Kira E Evans (Johns Hopkins University, Baltimore, Maryland, USA), Kira Evans (Johns Hopkins University), Bernard G Jaar (0000-0003-1210-7115, Nephrology Center of Maryland, Baltimore, Maryland, USA), Deidra C Crews (0000-0003-3425-5776, Johns Hopkins University, Baltimore, Maryland, USA), Raquel C Greer (0000-0001-9327-0234, Johns Hopkins University, Baltimore, Maryland, USA), L Ebony Boulware (0000-0002-8650-4212, Johns Hopkins University, Baltimore, Maryland, USA)
Year2012
Volume22
Issue7
Pages997-1006
Publication date2012-07-01
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueQualitative Health Research (JOURNAL)
Journal identifiersISSN: 1049-7323 • E-ISSN: 1552-7557
PublisherSAGE Publications Inc (PUBLISHER)
DOI10.1177/1049732312443427
PMID22645225
PMCIDPMC3927418
OpenAlexW2127747203
LanguageEN
Citations received3
References cited23

We conducted focus group meetings of African American and non-African American patients with end-stage renal disease (six groups) and their family members (six groups), stratified by race/ethnicity and treatment. We elicited differences in participants' experiences with shared decision making about initiating renal replacement therapy (RRT; that is, hemodialysis, peritoneal dialysis, or a kidney transplant). Patients were often very sick when initiating RRT, and had little, if any, time to make a decision about what type of RRT to initiate. They also lacked sufficient information about alternative treatment options prior to initiation. Family members played supportive roles and shared in decision making when possible. Reports were similar for African American and non-African American participants. Our findings suggest that a greater emphasis on the improved engagement of patients and their families in shared decision making about RRT initiation is needed for both ethnic/racial minorities and nonminorities

African american · Dialysis · Ethnic group · Family medicine · Hemodialysis · Intensive care medicine · Peritoneal dialysis · Political science · Renal replacement therapy · Sociology · Gender Studies · Geriatric Care and Nursing Homes · Medicine · Palliative Care and End-of-Life Issues · Patient-Provider Communication in Healthcare · Internal Medicine

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