Parents' Experiences Following Children's Moderate to Severe Traumatic Brain Injury
A Clash of Cultures
Bibliographic Data
| ID | 4670544 |
|---|---|
| Authors | Cecelia I Roscigno (University of Illinois at Chicago, Chicago, Illinois, USA, corresponding author), Kristen M Swanson (University of North Carolina, Chapel Hill, North Carolina, USA) |
| Year | 2011 |
| Volume | 21 |
| Issue | 10 |
| Pages | 1413-1426 |
| Publication date | 2011-10-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Qualitative Health Research (JOURNAL) |
| Journal identifiers | ISSN: 1049-7323 • E-ISSN: 1552-7557 |
| Publisher | SAGE Publications Inc (PUBLISHER) |
| DOI | 10.1177/1049732311410988 |
| PMID | 21613654 |
| PMCID | PMC3444164 |
| OpenAlex | W2147919737 |
| Language | EN |
| Citations received | 5 |
| References cited | 45 |
Little is understood about parents' experiences following children's moderate to severe traumatic brain injury (TBI). Using descriptive phenomenology, we explored common experiences of parents whose children were diagnosed with moderate to severe TBI. Parents from across the United States ( N = 42, from 37 families) participated in two semistructured interviews (~ 90 minutes in length and 12 to 15 months apart) in the first 5 years following children's TBI. First interviews were in person. Second interviews, done in person or by phone, facilitated updating parents' experiences and garnering their critique of the descriptive model. Parent themes were (a) grateful to still have my child, (b) grieving for the child I knew, (c) running on nerves, and (d) grappling to get what my child and family need. Parents reported cultural barriers because of others' misunderstandings. More qualitative inquiry is needed to understand how the knowledge, attitudes, beliefs, and culture-based expectations of others influence parents' interactions and the family's adjustment and well-being
Descriptive research · Descriptive statistics · Developmental psychology · Psychiatry · Qualitative research · Traumatic brain injury · Clinical Psychology · Family and Disability Support Research · Infant Development and Preterm Care · Psychology · Traumatic Brain Injury Research
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| Unique citing works | 5 |
|---|---|
| Citations per year | 0,36 |
| Citation span | 2012 - 2022 (11) |
| Citation velocity | historical |
| Highly cited | No |
| Citation types | Neutral: 5 |