Skip to main content

ETHNOS_APP

Home • Search • Journals • List 0

The Lived Experience of Siblings of Children With Cancer Who Attended a Peer Support Camp in the United States

Bibliographic Data

ID4712818
AuthorsDonna Gregory (0000-0002-0081-7200, National Institutes of Health, corresponding author), Marieke Van Puymbroeck (0000-0002-5881-8409, Clemson University), Brandi Crowe (Clemson University), Brandi M Crowe (Clemson University), Barry Garst (Clemson University), Barry A Garst (0000-0002-4706-3477, Clemson University), Michael Amylon (Pediatrics–Hematology/Oncology, Palo Alto, CA, USA), Michael D Amylon (Palo Alto Institute)
Year2022
Volume32
Issue8-9
Pages1342-1355
Publication date2022-07-01
Open AccessYes
TypeARTICLE
VenueQualitative Health Research (JOURNAL)
Journal identifiersISSN: 1049-7323 • E-ISSN: 1552-7557
PublisherSAGE Publications Inc (PUBLISHER)
DOI10.1177/10497323221095478
PMID35621300
OpenAlexW4281735026
LanguageEN
References cited65

Childhood cancer has a profound and negative impact on siblings, yet there are limited studies exploring lived experiences from their perspective. This qualitative study examined the perceptions and experiences of siblings of children with cancer who attended a peer support camp. Semi-structured interviews were conducted three to six weeks after the weeklong peer support camp with a stratified random sample of 10 siblings (six non-bereaved and four bereaved) ages 8 to 16 years. The qualitative data were analyzed using conventional content analysis and an inductive data-driven approach. Four themes emerged: social connection (subthemes: support/feeling of belonging, mentorship, and expressing feelings), personal growth, identity, and freedom to have fun and relax. These findings add to the scant body of research by providing enhanced understanding of the siblings' experiences and new insights into their perceptions of meaning and outcomes associated with participation in a peer support camp. These findings have implications for peer support camp programs and the well-being of siblings of children with cancer

Developmental psychology · Feeling · Medical education · Mentorship · Peer support · Perception · Qualitative research · Social support · Childhood Cancer Survivors' Quality of Life · Family and Disability Support Research · Family Support in Illness · Medicine · Psychology · Social Psychology

  • Designing Qualitative Research

    Uwe Flick•Designing Qualitative Research•2007

  • A review of the literature on peer support in mental health services

    Julie Repper, Tim Carter•Journal of Mental Health•2011

  • Changes in Stress Perception and Coping During Adolescence

    Open Access•Inge Seiffge-Krenke, Kaisa Aunola et al.•Child Development•2009

  • Sibling relationship quality and psychopathology of children and adolescents

    Open Access•Kirsten L Buist, Maja Deković et al.•Clinical Psychology Review•2013

  • Efficacy of peer support interventions for depression

    Open Access•Paul N Pfeiffer, Michele Heisler et al.•General Hospital Psychiatry•2011

  • Thematic analysis.

    Braun, Victoria Clarke•APA Handbook of Research Methods…•2012

  • Prenatal Care Use Among Women of Low Income

    Open Access•Wendy Sword•Qualitative Health Research•2003

  • “We’re Talking About You, Not to You”

    Open Access•Rachael Eastham, Alexandra Kaley•Qualitative Health Research•2020

  • Grief and Trauma in Children After the Death of a Sibling

    Megan M Paris, Brian L Carter et al.•Journal of Child & Adolescent…•2009

  • Identity development and peer group participation

    Open Access•Mary Jo Pugh, Mary Jo V Pugh et al.•New Directions for Child and…•1999

  • Caregiver Support in Mental Health Recovery

    Open Access•François Lauzier-Jobin, Janie Houle•Qualitative Health Research•2021

  • Theoretical Perspectives on Sibling Relationships

    Open Access•Shawn D Whiteman, Susan M Mchale et al.•Journal of Family Theory & Review•2011

  • Youth in foster care

    Open Access•David C Diehl, Robin B Howse et al.•Child & Family Social Work•2010

  • Mentoring adolescent foster youth

    Open Access•Kathy Lemon Osterling, Alice M Hines•Child & Family Social Work•2006

  • A General Inductive Approach for Analyzing Qualitative Evaluation Data

    Open Access•Donald R Thomas, David R Thomas•American Journal of Evaluation•2006

  • Bracketing in Qualitative Research

    Open Access•Lea Tufford, P A Newman et al.•Qualitative Social Work•2010

  • Everything Is Perfect, and We Have No Problems

    Open Access•Nicole Bergen, Ronald Labonté•Qualitative Health Research•2020

  • Qualitative Methods in Patient-Centered Outcomes Research

    Open Access•Roxanne Vandermause, F K Barg et al.•Qualitative Health Research•2017

  • Three Approaches to Qualitative Content Analysis

    Open Access•Hsiu-Fang Hsieh, Sarah E Shannon•Qualitative Health Research•2005

  • Sample Size in Qualitative Interview Studies

    Open Access•Kirsti Malterud, Volkert Dirk Siersma et al.•Qualitative Health Research•2016

  • Outcomes and Processes at a Camp for Youth With HIV/Aids

    Open Access•Ann Gillard, Peter A Witt et al.•Qualitative Health Research•2011

  • Sibling Relationships and Influences in Childhood and Adolescence

    Open Access•Susan M Mchale, Kimberly A Updegraff et al.•Journal of Marriage and the Family•2012

Highly citedNo

Tools

Open DOI
Ethnos_APP • Open Source Project • MIT License • Frontend v2.0.0 • Privacy and Cookies • API Documentation: api.ethnos.app/docs • API Source Code: GitHub • DOI: 10.5281/zenodo.17049435 • Frontend Source Code: GitHub • DOI: 10.5281/zenodo.17050053 • cruz.rio.br • Expectantes Misericordiae