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Exploring Family Decisions to Refuse Organ Donation at Imminent Death

Bibliographic Data

ID4716896
AuthorsWhittney H Darnell (0000-0003-3302-0457, Northern Kentucky University, Highland Heights, Kentucky, USA, corresponding author), Kevin Real (0000-0003-1524-8271, University of Kentucky, Lexington, Kentucky, USA), Andrew Bernard (University of Kentucky, Lexington, Kentucky, USA), Andrew C Bernard (0000-0001-6026-1286, University of Kentucky)
Year2020
Volume30
Issue4
Pages572-582
Publication date2020-03-01
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueQualitative Health Research (JOURNAL)
Journal identifiersISSN: 1049-7323 • E-ISSN: 1552-7557
PublisherSAGE Publications Inc (PUBLISHER)
DOI10.1177/1049732319858614
PMID31274058
OpenAlexW2954194086
LanguageEN
Citations received4
References cited40

Communication about organ donation at the time of imminent death is a meaningful, yet less understood, area of health communication. We employed a multiple goals framework to explore family normative perceptions of organ donation and the conversational goal tensions experienced during a family member's imminent death. Semi-structured interviews were conducted with 14 family members who refused to donate when approached by an organ procurement coordinator (OPC) upon the imminent death of a family member. Thematic analysis revealed that family members described their decisions to refuse donation as (a) last acts of love, (b) responses to unnecessary requests, and (c) consistent with the known beliefs of the patient. Participants described several goal tensions operating within the organ donation conversation itself, including (a) the management of frequent requests, (b) pressure to donate, and (c) enduring unwanted requests from the OPC. Communication goals frameworks offer practical insights for improving organ-related conversations

Conversation · Donation · Family medicine · Family member · Organ donation · Organ procurement · Political science · Qualitative research · Sociology · Thematic analysis · Communication · Grief, Bereavement, and Mental Health · Law · Medicine · Organ Donation and Transplantation · Palliative Care and End-of-Life Issues · Psychology · Social Psychology · Surgery · Transplantation

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Unique citing works4
Citations per year0,8
Citation span2021 - 2026 (6)
Citation velocitycurrent
Highly citedNo
Citation typesNeutral: 4

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