Strategies to Promote the Inclusion of Young Adults With Developmental Disabilities in Community-Based Health Studies
Dados Bibliográficos
| ID | 4720137 |
|---|---|
| Autores | Luz Maria Vazquez (0009-0000-3156-1415, York University, Toronto, Ontario, Canada, autor correspondente), N Khanlou (0000-0001-7176-8875, York University), Deborah Davidson (0000-0003-0176-2704, York University, Toronto, Ontario, Canada), Fatma Aidarus (York University, Toronto, Ontario, Canada) |
| Ano | 2019 |
| Volume | 29 |
| Fascículo | 7 |
| Páginas | 958-971 |
| Data de publicação | 2019-06-01 |
| Peer Reviewed | Sim |
| Open Access | Sim |
| Tipo | ARTICLE |
| Periódico | Qualitative Health Research (JOURNAL) |
| Identificadores do periódico | ISSN: 1049-7323 • E-ISSN: 1552-7557 |
| Editora | SAGE Publications Inc (PUBLISHER) |
| DOI | 10.1177/1049732318808249 |
| PMID | 30451071 |
| OpenAlex | W2901764190 |
| Idioma | EN |
| Citações recebidas | 4 |
| Referências citadas | 47 |
We discuss strategies to promote the inclusion of people with developmental disabilities (DDs) in qualitative community-based research studies. Strategies were applied in three projects conducted between 2012 and 2017 that addressed issues of socioeconomic challenges, discrimination, and exclusion of children and young adults with developmental disabilities (YADD). Strategies included partnership with community organizations; inclusion of YADD, family caregivers (FCs), and service providers in advisory committees (ACs); and strategies to accommodate YADD. As part of our contribution, we discuss issues of invisibility and exclusion of individuals with DDs who have "low" functioning capacities. There is a need to review studies sampling inclusion criteria as they may constitute a barrier for participation. Preference for sampling "high" functioning individuals may reinforce exclusion in research, and replicate broader patterns of socioeconomic exclusion of individuals with disabilities. Our discussion of inclusive research is informed by critical disability studies and the underlying principle "nothing about us without us
Alternative medicine · Developmental psychology · Environmental health · Inclusion and exclusion criteria · Inclusion–exclusion principle · Political science · Politics · Population · Qualitative research · Social exclusion · Social science · Socioeconomic status · Sociology · Adolescent and Pediatric Healthcare · Disability Rights and Representation · Down syndrome and intellectual disability research · Medicine · Psychology · Social Psychology · Gerontology
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A life course approach to chronic disease epidemiology
The Disability Studies Reader
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| Obras citantes distintas | 4 |
|---|---|
| Citações por ano | 0,67 |
| Intervalo de citações | 2020 - 2022 (3) |
| Velocidade de citação | historical |
| Altamente citado | Não |
| Tipos de citação | Neutras: 4 |