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To tell or not to tell

A qualitative interview study on disclosure decisions among children with inflammatory bowel disease

Bibliographic Data

ID4758758
AuthorsC Barned (0000-0001-8622-2808, University of Guelph), Alain Stinzi (University of Ottawa), David R Mack (0000-0001-5604-3200, Children's Hospital of Eastern Ontario), David Mack, Kieran C O''Doherty (0000-0002-9242-2061, University of Guelph, corresponding author)
Year2016
Volume162
Pages115-123
Publication date2016-08-01
Open AccessYes
TypeARTICLE
VenueSocial Science & Medicine (JOURNAL)
Journal identifiersISSN: 0277-9536 • E-ISSN: 1873-5347
PublisherElsevier BV (PUBLISHER)
DOI10.1016/j.socscimed.2016.06.023
PMID27344353
OpenAlexW2438278374
LanguageEN
Citations received14
References cited22

Developmental psychology · Disease · Family medicine · Pathology · Qualitative research · Social science · Sociology · Adolescent and Pediatric Healthcare · Clinical Psychology · Ethics and Legal Issues in Pediatric Healthcare · Inflammatory Bowel Disease · Medicine · Primary Care and Health Outcomes · Psychology · Gerontology

  • Disease experiences and perspectives of adolescent patients with inflammatory bowel disease

    Open Access•Yue Wang, Fan Guo et al.•Frontiers in Public Health•2026

  • Health literacy among children living with a long-term condition

    Open Access•Blake Peck, Lucy Bray et al.•Health Education Journal•2023

  • “The Rest of my Childhood was Lost”

    Open Access•C Barned, Alexis M Fabricius et al.•Qualitative Health Research•2022

  • Resilience as a Mediator of the Association Between Perceived Stigma and Quality of Life Among People With Inflammatory Bowel Disease

    Open Access•Dan Luo, Meijing Zhou et al.•Frontiers in Psychiatry•2021

  • Depression, anxiety, and loneliness among adolescents and young adults with IBD in the UK

    Open Access•Pamela Qualter, Alison Rouncefield-Swales et al.•Quality of Life Research•2020

  • Perceived medication adherence barriers mediating effects between gastrointestinal symptoms and health-related quality of life in pediatric inflammatory bowel disease

    Open Access•James W Varni, Robert J Shulman et al.•Quality of Life Research•2017

  • I am what I am?—An integrative review of understandings of ‘health identity’ and ‘illness identity’ in scientific literature

    Open Access•Pelle Pelters•Sociology of Health & Illness•2024

  • Internalized Stigma and Stigma-Related Isolation Predict Women’s Psychological Distress and Physical Health Symptoms Post-Abortion

    Open Access•Aisling T O''Donnell, Tara O’Carroll et al.•Psychology of Women Quarterly•2018

  • It Depends! Contextual Variability in Feminist Identity Disclosure Among Binary and Nonbinary Individuals

    Open Access•Eun Ju Son, E A Harris et al.•Sex Roles•2023

  • Integrating Illness Management Into Identity Verification Processes

    Open Access•Justin T Maietta•Qualitative Health Research•2021

  • The agentic Self and uncontrollable body

    Open Access•Gary Spencer, Sophie Lewis et al.•Health An Interdisciplinary…•2021

  • The centrality of disclosure decisions to the illness experience for youth with chronic conditions

    Open Access•Roberta L Woodgate, Pauline Tennent et al.•Journal of Health Psychology•2022

  • It grabs me by my neck

    Open Access•Hélène Kane, David Fearon•Childhood•2018

  • Creating Space for Youth Voice

    Open Access•Roberta L Woodgate, Pauline Tennent et al.•International Journal of…•2020

  • The Cambridge Handbook of Personal Relationships

    Open Access•Anita L Vangelisti, Daniel Perlman•Cambridge Handbook of Personal…•2006

  • Stigma of visible and invisible chronic conditions

    Open Access•Gloria Joachim, Sonia Acorn•Journal of Advanced Nursing•2000

  • Self-Disclosure in Personal Relationships

    Open Access•Kathryn Greene, Valerian J Derlega et al.•Cambridge Handbook of Personal…•2006

  • Medical and sociological typologies

    Open Access•J W Schneider, Peter Conrad•Social Science & Medicine Part A…•1981

  • Coming Out

    Open Access•Kimberly R Myers, Kimberly Myers•Journal of Medical Humanities•2004

  • The Fight for 'Health-related Normality

    Open Access•Nicola J Hall, Nicola Hall et al.•Journal of Health Psychology•2005

  • Disclosure and sickle cell disorder

    Open Access•Simon M Dyson, Karl Atkin et al.•Social Science & Medicine•2010

  • In the Closet with Illness

    J W Schneider, Peter Conrad•Social Problems•1980

  • The Beast Within

    Open Access•Isabel S Moore•Qualitative Inquiry•2013

Citations per year1.56
Citation span2017 - 2026 (10)
Highly citedNo

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