Journey mapping long Covid

Agency and social support for long-hauling

Bibliographic Data

ID4800433
AuthorsBernardo Figueiredo (0000-0003-1935-4370, RMIT University, corresponding author), J Sheahan (0000-0001-8282-4094, University of Edinburgh), Shiqi Luo (0000-0002-0506-2230, RMIT University), Stephen R Bird (0000-0002-3047-7390, Swinburne University of Technology), Dawn Wong Lit Wan (0000-0002-5968-5900, RMIT University), Sophia Xeno, Sophia Xenos (RMIT University), Catherine Itsiopoulos (0000-0003-1397-4149, RMIT University), Ronald Jessup (0000-0003-2211-5231, Northern Hospital), Rebecca Jessup, Zhen Zheng (0000-0001-6777-1166, RMIT University)
Year2024
Volume340
Pages116485
Publication date2024-01-01
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueSocial Science & Medicine (JOURNAL)
Journal identifiersISSN: 0277-9536 • E-ISSN: 1873-5347
PublisherElsevier BV (PUBLISHER)
DOI10.1016/j.socscimed.2023.116485
PMID38056307
OpenAlexW4389279464
LanguageEN
Citations received4
References cited25

Long COVID, also known as Post COVID-19 condition, is defined by the WHO as the continuation or development of new symptoms three months after the initial SARS-CoV-2 infection, with these symptoms lasting for at least two months with no other explanation. Despite many studies examining the causes and mechanisms of this disease, fewer studies have sought to understand the experience of those suffering from long COVID, or "long-haulers," This study contributes to the understanding of long-haulers (N = 14) by examining the role of agency and social support in shaping their journeys with long COVID. Drawing on a combination of interviews, questionnaires, and video diaries over a three-month period, journey mapping was used to document the participants' experiences, including symptoms, coping strategies, and lifestyle changes. Analysis of these journey maps resulted in a framework with four clusters demonstrating the importance of social support and patient agency shaping participants' Long COVID trajectory; the study contributes valuable insights into the daily lives and challenges individuals face with long COVID, informing the development of targeted support programs

2019-20 coronavirus outbreak · Agency (philosophy · Coping (psychology · Coronavirus disease 2019 (COVID-19 · Disease · Infectious disease (medical specialty · Pathology · Sense of agency · Severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2 · Social science · Social support · Sociology · Clinical Psychology · COVID-19 and Mental Health · Fibromyalgia and Chronic Fatigue Syndrome Research · Long-Term Effects of COVID-19 · Medicine · Psychology · Social Psychology · Gerontology · Virology

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