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Informal caregiver motivations, values, challenges and gains

A photovoice and interpretative phenomenological analysis of interrelationships

Bibliographic Data

ID4831772
AuthorsMikołaj Zarzycki (0000-0002-8357-563X, Bangor University), Diane Seddon (0000-0002-0660-4839, Bangor University), Val Morrison (0000-0002-4308-8976, Bangor University)
Year2023
Volume28
Issue6
Pages568-582
Publication date2023-05-01
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueJournal of Health Psychology (JOURNAL)
Journal identifiersISSN: 1359-1053 • E-ISSN: 1461-7277
PublisherSAGE Publications Inc (PUBLISHER)
DOI10.1177/13591053221124647
PMID36300898
OpenAlexW4307432570
LanguageEN
Citations received3
References cited28

The adoption of a caregiving role in the context of illness and disability is often taken for granted. This study explores caregivers' motivations to provide care and how these relate to values, and to the challenges and gains of caregiving. Eight semi-structured interviews were conducted with caregivers and photographs were taken by caregivers to exemplify their caregiving experiences. This photo-elicitation method complemented the use of Interpretative Phenomenological Analysis when applied to verbatim transcripts. Superordinate themes included: caregiver's life story; significance of family; caregiving obligations; caring relationship; challenges and gains associated with caregiver motivations. Intrinsic and extrinsic motivations were less distinct in caregivers' lived experiences than previously suggested, and were influenced by family values and specific challenges and gains of caregiving. The coexistence of different motivations and the nature of single complex motivations is discussed. The importance of caregiver assessment and support planning, and regular breaks from caregiving are highlighted

Caregiver burden · Context (archaeology · Dementia · Developmental psychology · Disease · Family caregivers · Interpretative phenomenological analysis · Lived experience · Phenomenology (philosophy · Photovoice · Psychotherapist · Qualitative research · Sociology · Superordinate goals · Family and Disability Support Research · Family Support in Illness · Medicine · Mental Health and Patient Involvement · Psychology · Gerontology · Social Psychology

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  • Now is the time for joy

    Open Access•Regina Casteleijn-Osorno•Community Work & Family•2026

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  • How Culture Shapes Informal Caregiver Motivations

    Open Access•Mikołaj Zarzycki, Diane Seddon et al.•Qualitative Health Research•2022

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  • Self-determination theory and the facilitation of intrinsic motivation, social development, and well-being

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Unique citing works3
Citations per year1,5
Citation span2024 - 2026 (3)
Citation velocitycurrent
Highly citedNo
Citation typesNeutral: 2

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