Endurance and contest
Women's Narratives of Endometriosis
Bibliographic Data
| ID | 4898477 |
|---|---|
| Authors | Milica Markovic (0000-0002-3998-1833, Monash University, corresponding author), L Manderson (0000-0002-7883-1790, Monash University), Narelle Warren (0000-0003-2623-4078, Monash University) |
| Year | 2008 |
| Volume | 12 |
| Issue | 3 |
| Pages | 349-367 |
| Publication date | 2008-07-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Health An Interdisciplinary Journal for the Social Study of Health Illness and Medicine (JOURNAL) |
| Journal identifiers | ISSN: 1363-4593 • E-ISSN: 1461-7196 |
| Publisher | SAGE Publications Inc (PUBLISHER) |
| DOI | 10.1177/1363459308090053 |
| PMID | 18579632 |
| OpenAlex | W2138467456 |
| Language | EN |
| Citations received | 18 |
| References cited | 42 |
Endometriosis is an often painful medical condition in which, in response to hormones associated with the menstrual cycle, the uterine lining grows in the peritoneum and other organs, bleeding into the surrounding organs and tissues. Diagnosis is not always straightforward, and women and health professionals alike may have difficulties recognizing period pain as a sign of anomaly, considering it instead as an inevitable part of menstruation. This article describes the illness narratives of Australian women with endometriosis, drawing on data collected during a study conducted in Victoria in 2004-5. Thirty women (aged 20-78 years) from various socio-demographic backgrounds participated in in-depth interviews. We explore the influence of socio-demographic background and social and family norms on women's illness narratives of endurance and contest. Narratives of endurance are characterized by the normalization of period pain by young women, their families and health professionals, and, with diagnosis, long-term exposure to biomedical treatments. In contrast, narratives of contest are dominated by how women's subjective experience is challenged by doctors, their requirements for a patient-centered approach, and their desire to have access to complementary treatments
CONTEST · Endometriosis · Family medicine · Gynecology · Hormone · Menstrual cycle · Menstruation · Narrative · Pelvic pain · Physical therapy · Education, Leadership, and Health Research · Endometriosis Research and Treatment · Medicine · Pregnancy-related medical research · Psychology · Internal Medicine · Surgery
Narrative Messages and the Use of Emotional Appeals on Endometriosis Screening Intention
The social and psychological impact of endometriosis on women's lives
Biopsychosocial predictors of symptoms of depression in a sample of South African women diagnosed with endometriosis
(Re)making Scales
Healthcare Providers’ Impact on the Care Experiences of Patients with Endometriosis
“It’s All in Your Head”
“So It’s Like a Painful Period?” Living with Endometriosis
The Endometriosis-Related Healthcare Experiences of Regional Australian Women
Apprendre à souffrir en silence. L’incorporation du genre à l’adolescence à travers la socialisation familiale et médicale aux douleurs menstruelles
A experiência de adoecimento de mulheres com endometriose
Narrative health research
Enduring and the horizon of repair
Quando os olhos não veem o que as mulheres sentem
Listen to women as if they were your most cherished person
Experiences of disempowerment amongst endometriosis patients
The need for a standardized conceptual term to describe invalidation of patient symptoms
Sensing pain
Activism Was a Survival Strategy
Finding the Findings in Qualitative Studies
The Wounded Storyteller
When pain in the arm is ‘all in the head’
Recollections of Menarche
Basics of Qualitative Research
Basics of Qualitative Research
Has menstruation been medicalised? Or will it never happen
No real progress towards equity
Putting Pain to Paper
Patients with medically unexplained symptoms
The subjective experience of health and illness in Ocuituco
The meanings of pain
Menorrhagia in general practice - disease or illness
Fleshing out Gender
How Many Interviews Are Enough
Techniques to Identify Themes
Pain perceptions, emotions and gender
Medicalisation by Whom? Accounts of Menstruation Conveyed by Young Women and Medical Experts in Medical Advisory Columns
| Unique citing works | 18 |
|---|---|
| Citations per year | 1,29 |
| Citation span | 2012 - 2026 (15) |
| Citation velocity | current |
| Highly cited | No |
| Citation types | Neutral: 17 |