Wishes, conflicts, and support needs of informal caregivers of patients in the palliative phase
A qualitative study
Bibliographic Data
| ID | 4932587 |
|---|---|
| Authors | Anne Looijmans (0000-0002-3333-562X, University of Groningen, University Medical Center Groningen, The Netherlands), Marrit Annika Tuinman (University of Groningen, University Medical Center Groningen, The Netherlands), Marieke Nanninga (0000-0002-6815-516X, Zorgbelang Groningen, The Netherlands), Mariët Hagedoorn (0000-0003-3444-3662, University of Groningen, University Medical Center Groningen, The Netherlands) |
| Year | 2025 |
| Pages | 13591053251357769-13591053251357769 |
| Publication date | 2025-08-07 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Journal of Health Psychology (JOURNAL) |
| Journal identifiers | ISSN: 1359-1053 • E-ISSN: 1461-7277 |
| Publisher | SAGE Publications Inc (PUBLISHER) |
| DOI | 10.1177/13591053251357769 |
| PMID | 40772448 |
| OpenAlex | W4413048680 |
| Language | EN |
| References cited | 39 |
This study explored wishes, conflicts, beneficial, and wished support of informal caregivers (ICGs) providing care to a palliative ill close other. We interviewed five current and 15 bereaved ICGs (25-75 years), and used thematic analyses. ICGs wished to continue life as normal as possible, spend time together and with their family, comfort their close other, and continue own activities. Caregivers experienced conflicts in balancing caregiving and own activities, quality time with each other and social contacts, the level of professional or informal support preferred, and in their shifting role from partner/child to nurse. ICGs experienced practical support, being heard, and good professional support as helpful. An overview of available support options, one contact for administrative issues, and an environment that pays attention to ICGs' wellbeing could make caregiving easier. Formal carers and digital tools can support caregivers in balancing wishes and boundaries with the requests of caregiving to decrease conflicts
Palliative care · Qualitative research · Social support · Sociology · Thematic analysis · Family and Patient Care in Intensive Care Units · Grief, Bereavement, and Mental Health · Medicine · Nursing · Palliative Care and End-of-Life Issues · Psychology · Social Psychology
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| Citation velocity | historical |
|---|---|
| Highly cited | No |