Skip to main content

ETHNOS_APP

Home • Search • Journals • List 0

The partner's perspective of the impact of pituitary disease

Looking beyond the patient

Bibliographic Data

ID5118842
AuthorsCornelie D Andela (0000-0002-3410-8701, Leiden University Medical Center, The Netherlands), Jitske Tiemensma (0000-0003-4420-8711, University of California, USA), Adrian A Kaptein (Leiden University Medical Center, The Netherlands), Margreet Scharloo (Leiden University Medical Center, The Netherlands), Alberto M Pereira (0000-0002-1194-9866, Leiden University Medical Center, The Netherlands), Noëlle Ga Kamminga (Maastricht University Medical Center, The Netherlands), Noëlle G A Kamminga, Nienke R Biermasz (0000-0001-5817-3594, Leiden University Medical Center, The Netherlands)
Year2019
Volume24
Issue12
Pages1687-1697
Publication date2019-10-01
Open AccessYes
TypeARTICLE
VenueJournal of Health Psychology (JOURNAL)
Journal identifiersISSN: 1359-1053 • E-ISSN: 1461-7277
PublisherSAGE Publications Inc (PUBLISHER)
DOI10.1177/1359105317695427
PMID28810427
OpenAlexW2593121766
LanguageEN
Citations received1
References cited32

People with pituitary disease report impairments in quality of life. The aim of this study was to elucidate the impact of the pituitary condition on the lives of partners. Four focus groups of partners of people with pituitary disease (Cushing's disease, non-functioning adenoma, acromegaly, prolactinoma) were conducted. Partners mentioned worries related to the pituitary disease and negative beliefs about medication, coping challenges, relationship issues, social issues and unmet needs regarding care. This study emphasizes the importance of not only paying attention to psychosocial well-being of people with pituitary disease but also to their partners

Acromegaly · Coping (psychology · Disease · Growth hormone · Perspective (graphical · Pituitary disease · Prolactin · Prolactinoma · Psychiatry · Psychosocial · Quality of life (healthcare · Childhood Cancer Survivors' Quality of Life · Medicine · Nursing · Patient-Provider Communication in Healthcare · Pituitary Gland Disorders and Treatments · Psychology · Internal Medicine

  • Voicing Experiences of Family Members Providing Care to Loved Ones With a Pituitary Condition

    Open Access•Carly Ellicott, Alyson Norman et al.•The Family Journal•2025

  • Changing Illness Perceptions After Myocardial Infarction

    Keith J Petrie, Linda D Cameron et al.•Psychosomatic Medicine•2002

  • Quality of life in couples living with Huntington’s disease

    Open Access•Ad A Kaptein, Margreet Scharloo et al.•Quality of Life Research•2007

  • Quality of life in partners of patients with cancer

    Open Access•Corinna Bergelt, Uwe Koch et al.•Quality of Life Research•2008

  • The Development of and First Experiences with a Behavioural Self-regulation Intervention for End-stage Renal Disease Patients and Their Partners

    Open Access•Daphne L Jansen, Monique Heijmans et al.•Journal of Health Psychology•2011

Citations per year1
Citation span2025 - 2025 (1)
Highly citedNo

Tools

Open DOISci-HubOpen Access
Ethnos_APP • Open Source Project • MIT License • Frontend v2.0.0 • Privacy and Cookies • API Documentation: api.ethnos.app/docs • API Source Code: GitHub • DOI: 10.5281/zenodo.17049435 • Frontend Source Code: GitHub • DOI: 10.5281/zenodo.17050053 • cruz.rio.br • Expectantes Misericordiae