Effects on the daily lives of children and teenagers who lived with leprosy

Datos Bibliográficos

ID5334938
AutoresMichelle Christini Araújo Vieira (0000-0001-7771-5387, Universidade Federal do Vale do São Francisco), Marli Geralda Teixeira (0000-0003-3318-3408, Universidade Federal da Bahia), Luís Augusto Vasconcelos Da Silva (0000-0003-0742-9902, Universidade Federal da Bahia), Claudelí Mistura (0000-0002-4445-7825, UNIVATES), Sued Sheila Sarmento (0000-0002-2167-8318, Universidade Federal do Vale do São Francisco), Aline Araújo Mascarenhas (0000-0002-7546-6425, Universidade Federal do Vale do São Francisco)
Año2022
Volumen46
Númerospe6
Páginas124-134
Fecha de publicación2022-01-01
Peer ReviewedSí
Open AccessSí
TipoARTICLE
RevistaSaúde em Debate (JOURNAL)
Identificadores de la revistaISSN: 0103-1104 • E-ISSN: 2358-2898
EditorialFapUNIFESP (SciELO) (PUBLISHER)
DOI10.1590/0103-11042022e611i
OpenAlexW4323345474
IdiomaEN
Referencias citadas16

The study aims to understand the effects of the disease on the daily lives of children and teenagers affected by leprosy. This was a qualitative research based on the theoretical framework of 'The Sociology of Erving Goffman'. We interviewed 14 participants individually, nine children and five teenagers, who underwent treatment for leprosy and were cured. A semi-structured interview was used, covering sociodemographic information and guiding questions about the participants' experiences with the disease, family, social aspects, and perceptions derived from the experiences. The data were analyzed by the sociology of Erving Goffman. The narratives emphasized the effects on daily life related to leprosy discovery, interaction networks, such as family and health professionals, health care, overcoming strategies and expectations. It was verified that the predominant element of the research is anchored in the fear of being discovered and discredited, in the perspective of having their identity of health resignified, by the illness, and by the evidence in view of the participant's experience due to prejudice, anonymity, and secret. This symbolically suggests that the participants experienced a certain construction of negative social life around leprosy. The illness directly interferes with their daily life and development, especially in the participant's social relationships

Aesthetics · Anonymity · Developmental psychology · Identity (music) · Leprosy · Narrative · Participant observation · Perception · Perspective (graphical) · Prejudice (legal term) · Qualitative research · Social science · Sociology · Health, Nursing, Elderly Care · Leprosy Research and Treatment · Medicine · Psychology · Science and Education Research · Social Psychology