"It Is Just a "Battery
Right” to Know in Mitochondrial Replacement
Bibliographic Data
| ID | 5337908 |
|---|---|
| Authors | Ilke Turkmendag (0000-0002-1107-7711, Newcastle Law School, Newcastle University, Newcastle upon Tyne, United Kingdom, corresponding author) |
| Year | 2018 |
| Volume | 43 |
| Issue | 1 |
| Pages | 56-85 |
| Publication date | 2018-01-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Science Technology & Human Values (JOURNAL) |
| Journal identifiers | ISSN: 0162-2439 • E-ISSN: 1552-8251 |
| Publisher | SAGE Publications Inc (PUBLISHER) |
| DOI | 10.1177/0162243917722843 |
| OpenAlex | W2741489619 |
| Language | EN |
| Citations received | 10 |
| References cited | 32 |
This article addresses the child's right to know their genetic origins in mitochondrial donation. It focuses on the UK's public debate on mitochondrial replacement techniques and examines the claims-making activities that shaped the donor information regulations. During the public consultation, downplaying the significance of the mitochondria helped distinguish mitochondria donors from gamete donors and determine their relational status with the resulting child. As a result, according to the Mitochondrial Donation regulations, mitochondria donors, unlike gamete donors, will not be required to be identifiable to the resulting child. I argue that, in the UK, similar to donor conception, public understanding of mitochondrial donation is shaped by a "calculus of genes": simplified accounts of how genes determine the resulting child's characteristics and identity. While the donor conception regulations ascribe social meaning to the passage of genes, the mitochondria regulations strip the social meaning away from the donation based on the assumption that the genetic contribution made by the donor is quantitatively insignificant in influencing the identity of the resultant offspring. The nature of the genetic material itself should not be considered as a privileged standpoint from which to decide on social meaning of the donation or the rights attached to it
Biology · Donation · Epistemology · Mitochondrion · Political science · Sociology · Sperm donation · Law · Organ Donation and Transplantation · Philosophy · Race, Genetics, and Society · Reproductive Health and Technologies · Genetics
Silences, omissions and oversimplification? The UK debate on mitochondrial donation
Genome editing
Reinterpreting “genetic identity” in the regulatory and ethical context of heritable genome editing
Mitochondrial replacement in the English-language print media
What’s Law got to do with Good Science
The Social Construction of Reproduction
Thinking the unthinkable
Science and democracy on stage at the Science and Technology Select Committee
Six Days in Plastic
Nuclear Families
Promotional metaphors and their popular appeal
Selling science, how the press covers science and technology
Law and the Regulation of Family Secrets
The Removal Of Donor Anonymity in The UK
The Role of Rights and Utility in Instituting a Child’s Right to Know Her Genetic History
The First ‘Designer Baby’
The Donor‐conceived Child's ‘Right to Personal Identity’
Neglected ethical issues in biobank management
Constructing Social Problems
Relational Human Rights
Eugenics and the New Genetics in Britain
Genetic essentialism
Public Eyes and Private Genes
Rhetoric in Claims-Making
Envisaging the embryo in stem cell research
| Unique citing works | 10 |
|---|---|
| Citations per year | 1,43 |
| Citation span | 2019 - 2025 (7) |
| Citation velocity | recent |
| Highly cited | No |
| Citation types | Neutral: 10 |