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In Invisibility and Isolation

The Experience of HIV-Affected Families in German-Speaking Switzerland

Bibliographic Data

ID5454708
AuthorsRebecca Spirig (0000-0001-8821-342X, University of Basel, corresponding author)
Year2002
Volume12
Issue10
Pages1323-1337
Publication date2002-12-01
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueQualitative Health Research (JOURNAL)
Journal identifiersISSN: 1049-7323 • E-ISSN: 1552-7557
PublisherSAGE Publications Inc (PUBLISHER)
DOI10.1177/1049732302238746
PMID12474906
OpenAlexW2170225247
LanguageEN
Citations received3
References cited26

Based on critical hermeneutics, the author presents insights about caregiving experiences of HIV-affected families in Switzerland. Using a qualitative approach, she interviewed 11 families and conducted 3 group discussions with members of different families. Two main themes emerged-Caught In Between: Family Changes Forced by HIV/AIDS and No Request for Support: Family Caregiving in the Context of Invisibility. The former portrays the families' struggle with new family constellations. Members felt close to, ambivalent toward, or distant from the infected member and built subgroups representing these connections and values. The latter portrays the families' withdrawal from their environment, whereby one or two close family members almost invisibly provided caregiving without outside support. These behaviors were reinforced by the Swiss health care system, which focuses on individuals. Suggestions for interventions are introduced

Ambivalence · Developmental psychology · Family medicine · German · Hermeneutics · Invisibility · Psychiatry · Psychological intervention · Qualitative research · Sociology · Family Caregiving in Mental Illness · Family Support in Illness · Gender Studies · History · Intergenerational Family Dynamics and Caregiving · Medicine · Psychology · Social Psychology

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    Open Access•Dunja Nicca, Katharina Fierz et al.•Journal of Mixed Methods Research•2011

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Unique citing works3
Citations per year0,17
Citation span2008 - 2011 (4)
Citation velocityhistorical
Highly citedNo
Citation typesNeutral: 3
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