Exploring One's Own Human Condition
Adults Affected by Cystic Fibrosis
Bibliographic Data
| ID | 5454884 |
|---|---|
| Authors | Caroline Huyard (0000-0002-7454-7039, École des Hautes Études en Sciences Sociales, Paris, France, corresponding author) |
| Year | 2008 |
| Volume | 18 |
| Issue | 4 |
| Pages | 535-544 |
| Publication date | 2008-04-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Qualitative Health Research (JOURNAL) |
| Journal identifiers | ISSN: 1049-7323 • E-ISSN: 1552-7557 |
| Publisher | SAGE Publications Inc (PUBLISHER) |
| DOI | 10.1177/1049732308315108 |
| PMID | 18354051 |
| OpenAlex | W2125326415 |
| Language | EN |
| Citations received | 1 |
| References cited | 27 |
Drawing on a sample of 11 interviews in France with adults affected by cystic fibrosis, and applying grounded-theory analysis, I describe illness-related learning processes in the case of persons affected by a genetic disorder with early onset. Three outcomes might be of interest to health professionals. First, the diagnosis of genetic disease does not imply that the patients consider themselves to be ill. The meaning of being affected by a genetic disorder has to be understood. Second, these patients gain a particular knowledge of their illness that helps them undertake or avoid certain actions to achieve goals they consider important, through a process I call 'critical internalization.' Third, these patients exhibit similarities with Freidson's classical medical practitioner's clinical mind, although health is not at all their main priority
Cystic fibrosis · Developmental psychology · Disease · Grounded theory · Health care · Health professionals · Pathology · Psychiatry · Psychotherapist · Qualitative research · Sociology · Clinical Psychology · Hermeneutics and Narrative Identity · Medicine · Mental Health and Psychiatry · Psychology
Leçons politiques de l'épidémie de sida
Profession of medicine
Chronic Illness and the Quality of Life
Outsiders
Reassembling the Social
Uncovering the Limits of Patient-Centeredness
The sociology of chronic illness
Illness and the Environment
Self-management of cystic fibrosis
Basics of Qualitative Research
Basics of Qualitative Research
Growing up with a Chronic Health Condition
Symptoms, health and illness behaviour in cystic fibrosis
Introduction
Science in Action
Profession of Medicine
Chronic illness as biographical disruption
Loss of self
Life on a slippery slope
Chronic illness as biographical disruption or biographical disruption as chronic illness? Reflections on a core concept
Waiting for the cure
Illness in the Context of Older Age
| Unique citing works | 1 |
|---|---|
| Citations per year | 0,06 |
| Citation span | 2010 - 2010 (1) |
| Citation velocity | historical |
| Highly cited | No |
| Citation types | Neutral: 1 |