The Involvement of Users and Carers in Health and Social Research

The Realities of Inclusion and Engagement

Dados Bibliográficos

ID5454937
AutoresSue Read (0000-0002-5532-8746, Keele University, Staffordshire, United Kingdom,, autor correspondente), Sian Maslin-Prothero (Keele University, Staffordshire, United Kingdom), Sian Maslin‐Prothero (0000-0001-9267-7243, Keele University)
Ano2011
Volume21
Fascículo5
Páginas704-713
Data de publicação2011-05-01
Peer ReviewedSim
Open AccessSim
TipoARTICLE
PeriódicoQualitative Health Research (JOURNAL)
Identificadores do periódicoISSN: 1049-7323 • E-ISSN: 1552-7557
EditoraSAGE Publications Inc (PUBLISHER)
DOI10.1177/1049732310391273
PMID21172921
OpenAlexW2103553522
IdiomaEN
Citações recebidas19
Referências citadas34

In this article we explore the challenges to researchers intending to involve vulnerable populations in health and social care research, and provide evidence-based recommendations to support the proactive inclusion of these populations in the research process. We provide a rationale for the study, followed by the introduction and descriptions of our research experiences (presented as two case studies) to provide a contextual backcloth for the discussion.We highlight the inherent challenges in empowering vulnerable populations in research, based on the combination of our own and other people's experiences. Collectively, these illustrate and underpin practice issues, relate theory to practice in a meaningful way, and facilitate the recognition of the realities in future development in this important area of involving users and carers. We conclude by providing recommendations for future practice and research development from a wider, international perspective

Political science · Public relations · Social care · Sociology · Health Policy Implementation Science · Medicine · Mental Health and Patient Involvement · Nursing · Participatory Visual Research Methods · Psychology · Social Psychology