The Triggers of Heightened Parental Uncertainty in Chronic, Life-Threatening Childhood Illness
Bibliographic Data
| ID | 5455512 |
|---|---|
| Authors | Marsha H Cohen (0000-0002-1351-9624, College of Nursing at Wayne State University, corresponding author) |
| Year | 1995 |
| Volume | 5 |
| Issue | 1 |
| Pages | 63-77 |
| Publication date | 1995-02-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Qualitative Health Research (JOURNAL) |
| Journal identifiers | ISSN: 1049-7323 • E-ISSN: 1552-7557 |
| Publisher | SAGE Publications Inc (PUBLISHER) |
| DOI | 10.1177/104973239500500105 |
| OpenAlex | W2104924248 |
| Language | EN |
| Citations received | 14 |
| References cited | 6 |
Advances in the treatment of childhood diseases have created a population of technology-dependent and medically fragile children whose life expectancy is unknown and whose future quality of life is unpredictable. Seven commonly occurring events were found to precipitate increased parental anxiety by triggering a heightened awareness of the uncertainty concerning the child's survival. These triggers are presented, with supporting data from parental interviews and published autobiographical accounts, as a set of causes, contexts, conditions, and interactions that account for predictable variation in the intensity of parental awareness of uncertainty. The findings reported here constitute one aspect of the grounded theory of living under conditions of sustained uncertainty for families who have a child with a chronic, life-threatening illness. That theory, it is proposed, is related to the larger chronic illness trajectory framework of Strauss and associates. Implications for practice are suggested
Anxiety · Developmental psychology · Grounded theory · Life expectancy · Population · Psychiatry · Psychotherapist · Qualitative research · Sociology · Childhood Cancer Survivors' Quality of Life · Clinical Psychology · Ethics and Legal Issues in Pediatric Healthcare · Family and Disability Support Research · Medicine · Psychology
Factor structure and psychometric properties of the german version chronic uncertainty scale (CU-20)
Uncertainty and Nursing Needs of Parents with Pediatric Cancer Patients in Different Treatment Phases
A “rotating menu” of medical uncertainty for families affected by telomere biology disorders
Parenting work and autism trajectories of care
Reconceptualizing uncertainty in illness
From Danger to Uncertainty
Exploring Parents' Stories of Coping with Their Child's Cancer
Structured Variation in Parental Beliefs about Autism
In their Own Words
Getting Used to It
Uncertainty of Social Network Members in the Case of Communication-Debilitating Illness or Injury
Embracing Uncertainty
The Main Problems of Parents of a Child With Epidermolysis Bullosa
What is not, but might be
| Unique citing works | 14 |
|---|---|
| Citations per year | 0,58 |
| Citation span | 2002 - 2024 (23) |
| Citation velocity | recent |
| Highly cited | No |
| Citation types | Neutral: 14 |