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The Male Experience of Caregiving for a Family Member with Alzheimer's Disease

Bibliographic Data

ID5455556
AuthorsKaren Parsons (0000-0001-6685-9289, Memorial University of Newfoundland, St. John's, Canada, corresponding author)
Year1997
Volume7
Issue3
Pages391-407
Publication date1997-08-01
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueQualitative Health Research (JOURNAL)
Journal identifiersISSN: 1049-7323 • E-ISSN: 1552-7557
PublisherSAGE Publications Inc (PUBLISHER)
DOI10.1177/104973239700700305
OpenAlexW2105178147
LanguageEN
Citations received23
References cited26

A phenomenological method was used to investigate the male experience of caregiving for a family member with Alzheimer's disease. Eight men, 5 spouses, and 3 sons were interviewed to find out what their experiences were like. From the analysis of the interview data, eight themes were identified for all the caregivers: (a) enduring, (b) vigilance, (c) a sense of loss, (d) aloneness and loneliness, (e) taking away, (P searching to discover, (g) the need for assistance, and (h) reciprocity. An additional theme was identified from the experience of the son caregivers: (i) overstepping the normal boundaries. The themes were interrelated to form a whole that captured the experience of caregiving for the male caregivers. Alzheimer's disease shaped these men's feelings toward every aspect of caregiving. Findings from this study challenge the primacy of the concept of 'caregiver burden' as the predominant aspect of caregiving

Developmental psychology · Disease · Family caregivers · Family medicine · Family member · Feeling · Loneliness · Primary caregiver · Clinical Psychology · Family Caregiving in Mental Illness · Family Support in Illness · Intergenerational Family Dynamics and Caregiving · Medicine · Psychology · Social Psychology · Gerontology

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Unique citing works23
Citations per year0,82
Citation span1998 - 2026 (29)
Citation velocitycurrent
Highly citedNo
Citation typesNeutral: 21

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