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"Digging Deeper" Advocate Researchers' Views on Advocacy and Inclusive Research

Bibliographic Data

ID5935486
AuthorsRobert Hopkins (0000-0003-0443-5207, Clare Inclusive Research Group—Brothers of Charity, Clare Services, V95 Y2T8 Ennis, County Clare, Ireland, corresponding author), Gerard Minogue (Clare Inclusive Research Group—Brothers of Charity, Clare Services, V95 Y2T8 Ennis, County Clare, Ireland), Joseph E Mcgrath, Joseph Mcgrath (Clare Inclusive Research Group—Brothers of Charity, Clare Services, V95 Y2T8 Ennis, County Clare, Ireland), Lisa Jayne Acheson (Clare Inclusive Research Group—Brothers of Charity, Clare Services, V95 Y2T8 Ennis, County Clare, Ireland), Pauline Concepta Skehan (Clare Inclusive Research Group—Brothers of Charity, Clare Services, V95 Y2T8 Ennis, County Clare, Ireland), Orla Marie Mcmahon (Clare Inclusive Research Group—Brothers of Charity, Clare Services, V95 Y2T8 Ennis, County Clare, Ireland), Brian Hogan (0000-0002-6902-4380, Clare Inclusive Research Group—Brothers of Charity, Clare Services, V95 Y2T8 Ennis, County Clare, Ireland)
Year2022
Volume11
Issue11
Pages506
Publication date2022-11-04
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueSocial Sciences (JOURNAL)
Journal identifiersISSN: 2076-0760 • E-ISSN: 2076-0760
PublisherMDPI AG (PUBLISHER • IT)
DOI10.3390/socsci11110506
OpenAlexW4308198426
LanguageEN
Citations received5
References cited9

We are the Clare Inclusive Research Group (CIRG) a group of advocates with a learning disability, funded by the Irish support agency the Brothers of Charity (B.O.C.), Clare Services. As a long-established inclusive research group we were approached to reflect on our journey as advocates and researchers. In this article we talk about our work, challenging and helping repeal discriminating Irish law regarding intimate relationships. We then talk about our understanding of advocacy and inclusive research and make recommendations to make this work more effective. Method: As a group of members of CIRG, with the coordinator of the group, we developed this article using online Zoom discussion calls to identify themes, circulating online explanations of drafts followed by Zoom reflections and finally responding to academic reviews. The direct comments made by us as advocate researchers have been retained as they were expressed. Conclusions, Limitations and recommendations: One of our team remarked "advocacy and inclusive research are twins". We concluded that they are very close but not identical. Our work together on this article led us to create a discussion paper, Manifesto for Inclusive Research. This was adopted as a touchstone for presentations at the first webinar roundtable of the newly formed Inclusive Research IASSID Special Interest Research Group in March 2022. In it we set out guidelines for creating inclusive research which require accessible information and valuing our input in terms that match our status as experts by experience in inclusive research. We challenge academic inclusive researchers who explore the world of intellectual disability to stand shoulder to shoulder with advocate inclusive researchers. Through our work together, we aim to create more fulfilling lives for us all

Agency (philosophy · Inclusion (mineral · Irish · Manifesto · Political science · Public relations · Set (abstract data type · Social science · Sociology · Community Development and Social Impact · Computer Science · Disability Rights and Representation · Gender Studies · Healthcare innovation and challenges · Law · Psychology

  • Australia at an educational crossroads

    Open Access•Therese M Cummings, Jennifer L Jolly et al.•Frontiers in Education•2024

  • From Inclusive Research to Inclusive Evaluation

    Open Access•Patricia O’brien, Roy Mc Conkey et al.•Social Sciences•2025

  • Peer Support Provided by People with Intellectual and Developmental Disabilities

    Open Access•Birte Pfeiffer, Taye Hallock et al.•Social Sciences•2024

  • Inclusive Research

    Open Access•Patricia O’brien•Social Sciences•2022

  • Self-Advocacy in Inclusive Research

    Open Access•Courtney Krueger, Lieke Van Heumen et al.•Social Sciences•2024

  • The added value of inclusive research

    Open Access•Jan Walmsley, Iva Strnadová et al.•Journal of Applied Research in…•2018

  • Conceptualizing Inclusive Research with People with Intellectual Disability

    Open Access•Christine Bigby, Patsie Frawley et al.•Journal of Applied Research in…•2014

  • Community participation of people with an intellectual disability

    Open Access•M M L Verdonschot, Luc De Witte et al.•Journal of Intellectual…•2009

  • The power of difference in inclusive research

    Susan Woelders, Tineke Abma et al.•Disability & Society•2015

  • Self-advocacy for People with Learning Difficulties

    Simone Aspis•Disability & Society•1997

Unique citing works5
Citations per year1,25
Citation span2022 - 2025 (4)
Citation velocityrecent
Highly citedNo
Citation typesNeutral: 5

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