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Collecting Biomeasures in the Panel Study of Income Dynamics

Ethical and Legal Concerns

Bibliographic Data

ID5958125
AuthorsHenry T Greely (0000-0002-1105-6734, Stanford Medicine, corresponding author)
Year2009
Volume55
Issue2
Pages270-288
Publication date2009-12-03
Open AccessNo
TypeARTICLE
VenueBiodemography and Social Biology (JOURNAL)
Journal identifiersISSN: 1948-5565 • E-ISSN: 1948-5573
PublisherInforma UK Limited (PUBLISHER • GB)
DOI10.1080/19485560903382452
PMID20183909
OpenAlexW2070253264
LanguageEN
Citations received1
References cited18

As social surveys like the Panel Study of Income Dynamics (PSID) consider adding biomeasures to their data collections, they will face complicated ethical, legal, and practical issues. Both fairly and not, research participants are likely to be more concerned about their biomeasures than about their social data. This heightened concern will force investigators to pay more attention to difficult issues such as the research participant's control over subsequent uses of the samples or data, the participant's right to withdraw from the project, protection of the research participant's privacy, return to the participant of important risk information gained through the research, some special issues involving children and families, and the process of informed consent. Investigators can navigate these issues successfully, but the effort will demand time, careful thought, and attention

Alternative medicine · Economics · Informed consent · Panel Study of Income Dynamics · Participant observation · Political science · Public relations · Skepticism · Social science · Sociology · Advanced Causal Inference Techniques · Biomedical Ethics and Regulation · Ethics in Clinical Research · Medicine · Psychology · Social Psychology

  • New strategies for biosample collection in population-based social research

    Open Access•Heather Gatny, Heather H Gatny et al.•Social Science Research•2013

  • A Linkage Between DNA Markers on the X Chromosome and Male Sexual Orientation

    Open Access•Dean H Hamer, Stella Hu et al.•Science•1993

  • In the Name of Eugenics

    Daniel J Kevles•In the Name of Eugenics•1998

  • Controlling Human Heredity

    Edward J Larson, Diane B Paul et al.•Journal of American History•1997

Citations per year0.08
Citation span2013 - 2013 (1)
Highly citedNo

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