Launching support groups for informal caregivers of people living with dementia within participatory action research
Bibliographic Data
| ID | 6134381 |
|---|---|
| Authors | Merle Varik (0000-0001-8173-1056, School of Governance, Law and Society, Tallinn University, Tallinn; Tartu Health Care College, Tartu, Estonia, corresponding author), Marju Medar (Tallinn University), Kai Saks (0000-0002-5699-4708, University of Tartu, Tartu, Estonia) |
| Year | 2021 |
| Volume | 22 |
| Issue | 3 |
| Pages | 205-222 |
| Publication date | 2021-06-30 |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Action Research (JOURNAL) |
| Journal identifiers | ISSN: 1476-7503 • E-ISSN: 1741-2617 |
| Publisher | SAGE Publishing (PUBLISHER • US) |
| DOI | 10.1177/14767503211023135 |
| OpenAlex | W3177445906 |
| Language | EN |
| Citations received | 3 |
| References cited | 42 |
Support groups are one possibility to empower informal carers and accordingly have spread across many countries because of their informal, inexpensive nature and because of their effectiveness. This paper aims to reflect on the viewpoints and experiences of the lessons learned from the participatory action research (PAR) conducted from 2016 to 2019. During PAR, several support groups in different regions of Estonia were launched to empower the informal caregivers. In the study, the stakeholders and researchers participated as partners and developed new knowledge and 17 support groups were launched in different regions of Estonia. In conclusion, our experiences highlighted the stakeholders’ collaboration which resulted in creating the knowledge needed to launch support groups. Based on our experience, we recommend launching support groups in countries where they do not exist yet, and to apply participatory action research
Action (physics · Action research · Citizen journalism · Participatory action research · Participatory development · Pedagogy · Political science · Public relations · Sociology · Viewpoints · Dementia and Cognitive Impairment Research · Geriatric Care and Nursing Homes · Mental Health and Patient Involvement
Critical theory and critical participatory action research
The Sage Encyclopedia of Action Research
The Sage Encyclopedia of Qualitative Research Methods
Conceptual framework for personal recovery in mental health
Participatory Action Research
Action Research
Developing a Framework for Research Evaluation in Complex Contexts Such as Action Research
Transformative Paradigm
The Effects of a Support Group on Dementia Caregivers’ Burden and Depression
Support groups for informal caregivers of people with dementia as opportunities for empowerment in Estonia
Assessing ‘empowerment’ as social development
A Broader View of Family Caregiving
Informal caregivers’ experiences of caring for persons with dementia in Estonia
Using thematic analysis in psychology
Research Design
Interpretive Interactionism
A call to Action Research for Transformations
Neighborhood in Solidarity
Building emergent situated knowledges in participatory action research
It is like stepping into another world
Using a developed participatory action research process in practice to help care providers deal with troubled conscience in residential care of older people
The Sage Handbook of Action Research
Thematic Analysis
Qualitative Quality
| Citations per year | 0.75 |
|---|---|
| Citation span | 2022 - 2026 (5) |
| Highly cited | No |