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Reflections of a community-based participatory researcher from the intersection of disability advocacy, engineering, and the academy

Bibliographic Data

ID6134639
AuthorsDora Raymaker (0000-0001-8237-6041, Portland State University, corresponding author), Dora M Raymaker (Portland State University, Portland, OR, USA)
Year2016
Volume15
Issue3
Pages258-275
Publication date2016-03-14
Open AccessYes
TypeARTICLE
VenueAction Research (JOURNAL)
Journal identifiersISSN: 1476-7503 • E-ISSN: 1741-2617
PublisherSAGE Publishing (PUBLISHER • US)
DOI10.1177/1476750316636669
PMID29097906
OpenAlexW2306059042
LanguageEN
Citations received5
References cited26

This article uses an evocative autoethnographic approach to explore the experience of being an insider-researcher in a community-based participatory research setting. Taking a holistic perspective and using the form of narrative story-telling, I examine the dynamics between the typically marginalizing (but sometimes empowering) experience of being an autistic woman and the typically privileging (but sometimes oppressive) experience of being an engineering professional, during a time of career upheaval. Themes of motivations and mentors, adversity from social services and the academy, belonging, the slipperiness of intersectional positioning, feedback cycles of opportunity, dichotomies of competence and inadequacy, heightened stakes, and power and resistance are explored through the narrative. While primarily leaving the narrative to speak for itself per the qualitative approach taken, the article concludes with a discussion of how the personal experiences described relate both to the broader work of insider-researchers within disability-related fields, and to misconceptions about self-reflection and capacity for story-telling in individuals on the autism spectrum

Autoethnography · Citizen journalism · Disability studies · Epistemology · Insider · Narrative · Participatory action research · Pedagogy · Political science · Reflexivity · Resistance (ecology · Social science · Sociology · Autism Spectrum Disorder Research · Disability Education and Employment · Disability Rights and Representation · Gender Studies · Psychology

  • The Aaspire practice-based guidelines for the inclusion of autistic adults in research as co-researchers and study participants

    Open Access•Christina Nicolaidis, Dora Raymaker et al.•Autism•2019

  • Supporting neurodiversity in higher degree research supervision

    Open Access•Anna Szörényi, Cambrey Payne•Higher Education Research &…•2025

  • The ableism elephant in the academy

    Damian Mellifont, Jennifer Smith-Merry et al.•Disability & Society•2019

  • It is like being put through a blender’

    Cathy Vaughan, Sarah Khaw et al.•Disability & Society•2019

  • From neurodiversity to neurodivergence

    Open Access•Mylène Legault, Jean-Nicolas Bourdon et al.•Synthese•2021

  • Community-based participatory research with communities defined by race, ethnicity, and disability

    Christina Nicolaidis, Dora Raymaker•The SAGE Handbook of Action…•2015

  • Diagnostic and Statistical Manual of Mental Disorders

    American Psychiatric Association American Psychiatric Association, Ewer Ewer•Diagnostic And Statistical Manual…•2013

  • Designing Qualitative Research

    Uwe Flick•Designing Qualitative Research•2007

  • Community-based Participatory Research

    Barbara A Israel, Amy Israel et al.•Education for Health•2001

  • The fifth discipline, the art and practice of the learning organization

    Open Access•Peter M Senge•Performance + Instruction•1991

  • Reflexivity in Research

    Open Access•J Rinaldi•Disability Studies Quarterly•2013

  • The anatomy of revolution.

    Crane Brinton•1938

  • Disability and Discourses of Web Accessibility

    Alison Adam, David Kreps•Information Communication & Society•2009

  • Disability and the Internet

    Paul T Jaeger•Disability and the Internet•2011

  • The Expertise Effect on Web Accessibility Evaluation Methods

    Open Access•Giorgio Brajnik, Yeliz Yeşilada et al.•Human-Computer Interaction•2011

  • Collaboration Strategies in Nontraditional Community-Based Participatory Research Partnerships

    Christina Nicolaidis, Dora Raymaker et al.•Progress in community health…•2011

  • User-Centered Policy Evaluations of Section 508 of the Rehabilitation Act

    Open Access•Paul T Jaeger•Journal of Disability Policy…•2008

  • Can the Web Be Made Accessible for People with Intellectual Disabilities

    Helen Kennedy, Helen W Kennedy et al.•The Information Society•2011

  • Paradigm Shifts in Disability and Health

    Katherine E Mcdonald, Katherine Mcdonald et al.•American Journal of Public Health•2013

  • Changing the Social Relations of Research Production

    Melvin Oliver, Mike Oliver•Disability Handicap & Society•1992

  • The Time- and Context-Contingent Nature of Intersectionality and Interlocking Oppressions

    Open Access•Wendy Hulko•Affilia•2008

  • Analyzing Analytic Autoethnography

    Open Access•C Ellis, Carolyn S Ellis et al.•Journal of Contemporary Ethnography•2006

Citations per year0.71
Citation span2019 - 2025 (7)
Highly citedNo

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