Understanding the Concepts of Death in Bereaved Teens with Intellectual Disabilities
An Examination of Measurement Tools
Bibliographic Data
| ID | 6192074 |
|---|---|
| Authors | Arlen Grad Gaines (0000-0001-7243-0286, JSSA Hospice, Rockville, Maryland, USA, corresponding author) |
| Year | 2023 |
| Volume | 31 |
| Issue | 4 |
| Pages | 638-654 |
| Publication date | 2023-10-01 |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Illness Crisis & Loss (JOURNAL) |
| Journal identifiers | ISSN: 1054-1373 • E-ISSN: 1552-6968 |
| Publisher | SAGE Publications Inc (PUBLISHER) |
| DOI | 10.1177/10541373231163297 |
| OpenAlex | W4324372964 |
| Language | EN |
| Citations received | 1 |
| References cited | 38 |
Teens with intellectual disabilities experience disenfranchised grief, as they are often excluded from death education and rituals. Such exclusion can impact opportunities to understand the concepts of death and process the loss. This paper examines the psychometric properties of the limited existing tools designed to measure the understanding of concepts of death in parentally bereaved teens with intellectual disabilities (ID) who are included in after-death rituals as compared to those not included. A literature search uncovered no tools for the concept of death understanding for teens with ID, but four related tools were examined due to their potential proximal applicability. Though further development would be needed, the EsCoMu Scale and the Concept of Death Questionnaire showed the most potential use for this population. Further research is needed to develop a tool specific to teens with ID that takes into account the developmental, cognitive, and social aspects of their grieving experiences
Cognition · Death education · Developmental psychology · Grief · Intellectual disability · Population · Psychiatry · Family and Disability Support Research · Grief, Bereavement, and Mental Health · Medicine · Nursing · Palliative Care and End-of-Life Issues · Psychology
Diagnostic and Statistical Manual of Mental Disorders
Bereavement research
Children's Understanding of Death
Prevalence of intellectual disability
A Psychometric Toolbox for Testing Validity and Reliability
A New Instrument to Assess Children’s Understanding of Death
Death and Grief as Experienced by Adults with Developmental Disabilities
Bereavement among Adolescents with Intellectual Disability
Concept of Death in a Sample of Israeli Kibbutz Children
How Adults With an Intellectual Disability Experience Bereavement and Grief
The acquisition of a mature understanding of three components of the concept of death
Ethical issues in bereavement research
| Citations per year | 1 |
|---|---|
| Citation span | 2025 - 2025 (1) |
| Highly cited | No |