Resigned but Resilient
Caregiver Perceptions of Role Ambiguity and Quality of Care During Hospital-to-Home Transitions of Older Latinos Living With Dementia
Bibliographic Data
| ID | 6432461 |
|---|---|
| Authors | Sylvan Greyson (0000-0003-0160-8029, Johns Hopkins University), Maningbe Keita (Johns Hopkins University), Rhea Sharma (0000-0002-7066-4713, Johns Hopkins University), Sevil Yaşar (0000-0002-5080-6534, Johns Hopkins University), Cynthia Boyd (Johns Hopkins University), Cynthia M Boyd (0000-0001-5642-9015, Johns Hopkins Medicine), Sarah Keller (0000-0001-8641-5562, Johns Hopkins University), Ayşe P Gürses (0000-0001-7422-6852, Johns Hopkins Medicine), Ayse Gurses (Johns Hopkins University), Quincy M Samus (0000-0001-8218-7769, Johns Hopkins University), Quincy Samus (Johns Hopkins University), Alicia I Arbaje (0000-0002-3224-3942, Johns Hopkins University, corresponding author) |
| Year | 2025 |
| Volume | 37 |
| Issue | 3-4_suppl |
| Pages | 66S-75S |
| Publication date | 2025-03-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Journal of Aging and Health (JOURNAL) |
| Journal identifiers | ISSN: 1552-6887 • E-ISSN: 0898-2643 |
| Publisher | SAGE Publishing (PUBLISHER • US) |
| DOI | 10.1177/08982643241309443 |
| PMID | 40123182 |
| OpenAlex | W4408775674 |
| Language | EN |
| Citations received | 1 |
| References cited | 36 |
Objectives Hospital-to-home transitions are high-risk periods, especially for Latinos living with dementia. Cultural differences may exacerbate role ambiguity—unclear patient/caregiver/provider roles. The objective was to elicit views on role ambiguity and care quality during hospital-to-home transitions of older Latinos with dementia and categorize factors shaping healthcare-related task distribution. Methods Qualitative study using semi-structured interviews with caregivers of older Latinos with dementia. Results Interviews with 21 caregivers indicated 1) concern about over-medication, 2) resignation over limited medication effectiveness, 3) scarcity of culturally specific resources, 4) wariness to trust medical institutions, and 5) aversion to institutional care. Factors shaping healthcare-related tasks were geographic proximity, gender roles, relationship to patient, English fluency, and work schedules. Discussion Caregivers felt disillusioned and unsupported during care transitions. Findings suggest healthcare professionals and advocacy organizations should carefully consider efforts to connect caregivers to sources of culturally tailored, home-based support, and they could engage in concerted efforts to earn trust
Ambiguity · Dementia · Disease · Ethnic group · Family caregivers · Health care · Perception · Qualitative research · Sociology · Dementia and Cognitive Impairment Research · Geriatric Care and Nursing Homes · Medicine · Nursing · Palliative Care and End-of-Life Issues · Psychology · Gerontology
| Unique citing works | 1 |
|---|---|
| Citations per year | 1 |
| Citation span | 2025 - 2025 (1) |
| Citation velocity | recent |
| Highly cited | No |
| Citation types | Neutral: 1 |