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Engaging Youth in Bladder Health Research

Perspectives from a National Consortium's Young Women's Health Council

Bibliographic Data

ID6446359
AuthorsAyah El‐fahmawi, Ayah El-Fahmawi, Jessica Schwalb, Ciearria Samuel, Harriett Davidson (0000-0003-2332-9194), Hannah Davidson (0000-0002-9545-7788), Johanna Lumbantobing, Jennifer Hebert-Beirne (0000-0002-9473-0017), Jeni Hebert-Beirne, Peter Scal (0009-0001-0773-2146), Lisa Wheeler, Leena Wheeler, Fairis Cuneo, Janice Phillips, John A Phillips (0000-0002-5769-730X), Shayna D Cunningham (0000-0001-8876-9962)
Year2025
Volume19
Issue2
Pages271-277
Publication date2025-06-01
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueProgress in community health partnerships (JOURNAL)
Journal identifiersISSN: 1557-055X • E-ISSN: 1557-0541
PublisherJohns Hopkins University Press (PUBLISHER • US)
DOI10.1353/cpr.2025.a965366
PMID40718925
OpenAlexW4412578324
LanguageEN

Engaging community stakeholders is increasingly an expected component of health-related research. This paper describes the development and implementation of a Young Women's Health Council (YWHC) within the context of a multicenter research consortium focused on the emerging field of bladder health from the perspective of its members. The principles of mutual benefit and social exchange direct the council's activities. To participate in the YWHC, members, ages 13 to 21 years, must be attentive to communications from facilitators and actively participate in bimonthly 90-minute Zoom meetings during which they provide input on research activities. YWHC members gain valuable knowledge, skills, and motivation for personal health and health careers and take pride in contributing to the research. Although the YWHC positively impacts both the young women and the research consortium, there remain areas for improvement. Recommendations are presented for fostering meaningful community engagement with youth in research initiatives

Community engagement · Context (archaeology · Medical education · Political science · Pride · Public relations · Adolescent and Pediatric Healthcare · Enhanced Recovery After Surgery · Health Policy Implementation Science · Medicine · Psychology

Citation velocityhistorical
Highly citedNo

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