Identifying Family and Community-based Care Solutions for Children with Albinism

Bibliographic Data

ID6456882
AuthorsCharlotte Baker (0000-0002-8946-7162, Lancaster University), Martin Punaks (Independent researcher, London, UK), Muluka-Anne Miti-Drummond (UN Independent Expert on the Enjoyment of Human Rights by Persons with Albinism, Zambia)
Year2025
Volume33
Issue2
Pages265-290
Publication date2025-06-19
Peer ReviewedYes
Open AccessNo
TypeARTICLE
VenueThe International Journal of Children s Rights (JOURNAL)
Journal identifiersISSN: 0927-5568 • E-ISSN: 1571-8182
PublisherBrill (PUBLISHER • NL)
DOI10.1163/15718182-33020001
OpenAlexW4411615079
LanguageEN
References cited13

In sub-Saharan Africa, discrimination and stigmatisation, lack of access to appropriate health services and inclusive education, the risk of ritual attacks, and the perceived burden of care, mean that some children with albinism are being placed in residential care or boarding schools by the State or families, purportedly for their care and protection. Whilst there is a wealth of information available in the respective areas of “albinism” and “care”, there has been little attention as to how the two areas intersect and how they overlap with questions of health, education, social protection, justice and disability rights. Equally, there has been limited critical attention to the experience and perspectives of children with albinism, and their lives in African contexts (Franklin, 2018), which means that interventions to better support, empower and protect them remain elusive. Our article responds to the particular situation of children with albinism who are vulnerable to attack or ritual abuse in sub-Saharan Africa and considers how these children should best be cared for

Albinism · Biology · Autism Spectrum Disorder Research · Medicine · Genetics

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