Skip to main content

ETHNOS_APP

Home • Search • Journals • List 0

Gardens, agency and citizenship of people with dementia

A Critical Interpretive Synthesis

Bibliographic Data

ID7146329
AuthorsLee Rushton (0009-0007-1166-4565, University of Wollongong, corresponding author), Louisa Smith (0000-0001-7026-0607, Deakin University), Lyn Phillipson (0000-0003-2173-0291, University of Wollongong)
Year2025
Volume45
Issue10
Pages2141-2163
Publication date2025-10-01
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueAgeing and Society (JOURNAL)
Journal identifiersISSN: 0144-686X • E-ISSN: 1469-1779
PublisherCambridge University Press (CUP) (PUBLISHER)
DOI10.1017/s0144686x24000771
OpenAlexW4405604919
LanguageEN
Citations received2
References cited58

People living with dementia are often presumed to have no agency or capacity to act in the social world. They are often excluded from participating in research while research methodologies may not capture their embodied engagement with people and places. Yet, like everyone, people with dementia can express their agency in nuanced ways, for example, through emotions or embodied expression. In the conceptual framework discussed here, nuanced agency is conceived as consisting of non-deliberative elements (embodied, emotional, habituated, reflexive and intersubjective) and deliberative elements (choices or decisions and facilitative). Although people with dementia have been found to benefit from gardens with their sensory appeal, how they experience gardens is not well understood. This critical interpretive synthesis aims to explore how people with dementia experience nuanced forms of agency and citizenship in gardens. A conceptual framework of agency was developed to address the aim and support the analysis. Analysis of the 15 included studies highlighted the value of the conceptual framework in identifying a wider and more granular array of nuanced agency expressed in embodied form and through dialogue. This included expressions of intersubjective and facilitative agency that informed opportunities for people with dementia to experience relational citizenship socially in communal garden settings. These findings suggest an opportunity for researchers to explore the embodied agency of people living with dementia more comprehensively by applying theoretical concepts of agency. Further testing of the framework’s utility for guiding collection and analysis of primary data involving people with dementia in garden settings is recommended

Agency (philosophy) · Citizenship · Conceptual framework · Dementia · Embodied cognition · Epistemology · Political science · Politics · Public relations · Reflexivity · Social science · Sociology · Medicine · Olfactory and Sensory Function Studies · Psychology · Urban Green Space and Health

  • Nature-based engagement, ageing in place, and the well-being of community-dwelling older adults living with dementia

    Open Access•Meghánn Catherine Ward, Yasemin Afacan et al.•Wellbeing Space and Society•2026

  • Exploring How Nuanced Agency Enables Citizenship of People Living With Dementia in Their Home Gardens

    Open Access•Lee Rushton, Lyn Phillipson et al.•Sociology of Health & Illness•2025

  • The PRISMA 2020 statement

    Open Access•Matthew J Page, Joanne E McKenzie et al.•International Journal of Surgery•2021

  • ‘Knocking at the door of humanity’

    Colleen Reid, Ania Landy et al.•Leisure/Loisir•2023

  • Respecting Agency in Dementia Care

    Open Access•Steve Matthews, Jeanette Kennett•Journal of Applied Philosophy•2022

  • Reflecting on reflexive thematic analysis

    Braun, Virginia Braun et al.•Qualitative Research in Sport and…•2019

  • ‘My father is a gardener … ’

    Open Access•Rita Newton, John Keady et al.•Health & Place•2021

  • Green dementia care in accommodation and care settings

    Open Access•J Carl Barrett, Simon Evans et al.•Housing Care and Support•2019

  • Characteristics and Challenges for the Development of Nature-Based Adult Day Services in Urban Areas for People with Dementia and Their Family Caregivers

    Open Access•Jan Hassink, Lenneke Vaandrager et al.•International Journal of…•2019

  • Provision of Outdoor Nature-Based Activity for Older People with Cognitive Impairment

    Open Access•Rachel Collins, Steve Owens et al.•Health & Social Care in the…•2023

  • Green spaces, dementia and a meaningful life in the community

    Open Access•Nkolika Janet Mmako, Helen Courtney-Pratt et al.•Health & Place•2020

  • Enacting agency

    Rossio Motta-Ochoa, Natalia Incio Serra et al.•Arts & Health•2021

  • Broadening and deepening the understanding of agency in dementia

    Millie van der Byl Williams, HANNAH ZEILIG•Medical Humanities•2022

  • The landscape of dementia inclusivity

    Open Access•Peter Marsh, Helen Courtney‐Pratt et al.•Health & Place•2018

  • Recognising the agency of people with dementia

    Geraldine Boyle•Disability & Society•2014

  • Facilitating decision-making by people with dementia

    Geraldine Boyle•The Journal of Social Welfare Law•2013

  • They didn't think we'd do it!”

    Open Access•Sarah Swift, Nicholas Jenkins et al.•Journal of Aging Studies•2024

  • Co-creativity, well-being and agency

    Open Access•HANNAH ZEILIG, Victoria Tischler et al.•Journal of Aging Studies•2019

  • Narrative(,) citizenship and dementia

    Open Access•Clive Baldwin•Journal of Aging Studies•2008

  • Facilitating creativity in dementia care

    Open Access•Jane M Robertson, Vikki Mccall•Ageing and Society•2020

  • Let me grow old and senile in peace

    Open Access•Maarja Siiner•Ageing and Society•2019

  • Transforming lived places into the connected neighbourhood

    Open Access•Xia Li, John Keady et al.•Ageing and Society•2021

  • Ways of being’ in the domestic garden for people living with dementia

    Open Access•Christina Buse, Andrew Balmer et al.•Ageing and Society•2024

  • Qualities of the environment that support a sense of home and belonging in nursing homes for older people

    Open Access•Karin Johansson, Lena Borell et al.•Ageing and Society•2022

  • Ethnographic reflections on selfhood, embodiment and Alzheimer's disease

    Open Access•Pia Kontos, Pia C Kontos•Ageing and Society•2004

  • Showing how they feel

    Open Access•Geraldine Boyle, Latoya Warren•Families Relationships and…•2015

  • I can still swing a spade

    Open Access•Helen Foster-Collins, Raff Calitri et al.•Ageing and Society•2025

Unique citing works2
Citations per year2
Citation span2025 - 2026 (2)
Citation velocitycurrent
Highly citedNo
Citation typesNeutral: 1

Tools

Open DOIOpen Access
Ethnos_APP • Open Source Project • MIT License • Frontend v2.0.0 • Privacy and Cookies • API Documentation: api.ethnos.app/docs • API Source Code: GitHub • DOI: 10.5281/zenodo.17049435 • Frontend Source Code: GitHub • DOI: 10.5281/zenodo.17050053 • cruz.rio.br • Expectantes Misericordiae